Although most said they'd let their physician know if asked, survey finds
by bernadettep on Sat Dec 22, 2012 05:19 PM
by jdykllr on Mon Dec 24, 2012 06:16 AM
I would love to hear any success news on Lomustine. My husband will be on it soon along with Avastin. He had recurrance just had his second brain surgery on Dec-7-12
by cpnmorgan on Wed Dec 26, 2012 03:27 PM
My husband is at nearly 3 1/2 years fighing GBM. He has recurrence going on now and started the CCNU 3 weeks ago. It is too soon to tell if it is working. He also started back on Avastin, and did gamma knife a month ago. MRI is slated for sometime in January.
From what I read CCNU was used primarily in GBM patients before Temodar arrived. Now it seems CCNU is used as a last ditch effort for patients with recurrence. Disheartening.
by Bulley1 on Thu Dec 27, 2012 07:48 PM
by bernadettep on Fri Dec 28, 2012 12:57 AM
On Dec 27, 2012 7:48 PM Bulley1 wrote: My husband's NO listed 3 other chemo treatments she can use. CCNU was the last . Thinking there is a reason it's the last.........
Wondering how cpnmorgan's husband is tolerating the CCNU. Headaches? Nausea?
Hope it works, Bernadette!!
On Dec 27, 2012 7:48 PM Bulley1 wrote:
Can you tell me which chemo's those are?
by cpnmorgan on Fri Dec 28, 2012 01:24 AM
He started the CCNU December 3 and just as predicted 3 weeks later really hit a wall. Fatigued. Nausea. Headaches. Bloody nose issues. His platelet count a month ago was 178,000 and yesterday at 81,000. He was able to get his Avastin chemo but they would not give him the CPT-11 due to his below 100k platelet count.
by Bulley1 on Fri Dec 28, 2012 03:18 AM
by Bulley1 on Fri Dec 28, 2012 04:44 AM
by cpnmorgan on Fri Dec 28, 2012 01:51 PM
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