One patient with glioblastoma still alive nine years later
by Fabiana on Thu Dec 27, 2012 01:16 PM
by siblingof on Thu Dec 27, 2012 01:49 PM
by Fabiana on Thu Dec 27, 2012 07:22 PM
by ourVictory on Fri Dec 28, 2012 06:00 PM
Craniotomy, radiation for 6 weeks, temodar 13-14 months, avastin + irinotecan(CPT11) 6 months, avastin alone for the last 5 months and I am alive. My NO(Neuro oncologist) supports(until now) homeopathic treatments. This is going on in the USA. I add,Guanabana(graviola), blue scorpion venom and a lot of support from family and friends helps me a lot.
by siblingof on Fri Dec 28, 2012 10:55 PM
by phyllischarles on Sat Dec 29, 2012 02:08 AM
My Husband is interested in Scorpion Venom. Would love more infor about it..
by nikki1128 on Wed Jan 02, 2013 02:53 AM
Avastin with cpt-11 is a joke... the cpt 11 only makes yoy even more sick... yes, i have taken this... and had too "hug the toilett way too often) MY Neurologist told mt that the cpt-11 does nothing for the cancer... I have stage 4 GBM and have been fighting this for the last 6 and a half years.... please read my profile, hope this helps...
by amygaber on Wed Jan 02, 2013 07:13 PM
Avastin is a life saver. My husband has been on it for 8 months along with temador and no regrowth and very minimal side effects.
by dbrinker on Thu Jan 03, 2013 12:19 AM
I just wanted to tell you to ask the Doctor if they can prescribe Zofran for the nauseau if that is what your brother is complaining about. My hubby is 73 & has stage IV Glibo, tumor removed in May and did the rounds of radiation and oral chemo Temodar. Here is what I do to combat the upset stomach and it works. The day before chemo I start this Zofran twice a day and even on the last day (day 6) of Temodar and he has never felt sick to his stomach not once. Realizing everyone is different but it does the trick for us. As far as supplements we use Vitamin C, B12 and a good multi vitamin.
By the way your English is perfect...Good Luck
by miamivice on Thu Jan 03, 2013 12:29 AM
Temodar and radiation is usually the first treatment, CPT-11 and Avastin is second. Which one is better depends on the individual. I have been through both. The second had a little side effects I had to deal with but that's because IV drugs are harder on the system than the oral Temodar is on most people. Fabiana, GBM's are aggressive and bad. My first surgery (removed 100%) was 03/31/2012. I had recurrance and second surgery 09/24/2012. On 12/07 I had an MRI after doing 8 weeks of Avastin/CPT-11. The scans showed NO recurrance in the original site but now I have 4 new "suspicious" spots in 3 different locations of my brain so I have a biopsy surgery scheduled for 01/07/2013. I'm sorry if my frankness scares you. Just know this can be different between people. I have 4 Facebook friends with GBM's and they are long term survivors of between 10-19 years. They aren't doing anything unusual or different from what I've mentioned. In fact the lady with 19 years only did initial radiation but NO CHEMO! I can say the common practice with all of these people and myself included is a very strong faith in almighty God, Jesus Christ. God bless you and your brother.
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