One patient with glioblastoma still alive nine years later
by ang1235 on Thu Jan 03, 2013 06:30 AM
by PhillyH on Thu Jan 03, 2013 10:21 AM
So sad to learn about your mom's late diagnosis. Although my cancer is in the lungs I also experienced the sense of total exhaustion for months. Going to docs repeatedly and getting nowhere. Only when I said enough's enough did I get referred for a chest x-ray. Even then it still took four months and two spells in hospital to acheive diagnosis. My husbands' prostate cancer was discovered when I asked if a cancer check could be done on his blood test for chlostrerol! Good news after diagnosis, treatment was fast and positive. I am on oral chemo and back at work, feel and look really well. Regular checks help me stay confident. Husband discharged and now on 6 monthly checks. Stay strong, it is worrying and tough on loved ones but research is constantly finding different ways to tackle this cursed disease. I pray that your mom's treatment is successful and that you enjoy her love and company for a very long time.
by IKandy on Thu Jan 03, 2013 12:47 PM
I am keeping you and your mom in my thoughts and prayers, And hoping everything comes out wonderful for you both. It is a scary thing to find this out. I to have lung cancer as PhillyH I have been in treatment about 6 months and it's in remission now. I read some of the entries on here an wonder where an the hell did some these doctors come from. When my regular doctor did and x-ray for a chest cold, Man oh Man he had me all over the place in no time.. Ct-scans Pet scans and I am not sure what the one was, But I needed valium for that one, Then a biopsy... And with in a months time I was getting chemo..Or there about...And I live in Idaho.. I just found out in December of the cancer being gone, What a wonderful Christmas gift to me and my family. But I am having one more chemo on Jan 9th then talk about maintaining where I am now. All I can tell you is just keep your head up, Because I am sure your mom is trying to stay strong for everyone else and not showing how scared she is, This is a great place to just talk and vent... Good luck and keep a smile on your face...
by ang1235 on Thu Jan 03, 2013 01:55 PM
by BernadetteH on Thu Jan 03, 2013 02:58 PM
I can't explain why your Mom is sleeping so much more than she used to but I can tell you that I am also doing that. Once I had my colon cancer surgery I have only short spurts of vim and vigor...although I do work six hours a day or more. At times I have wondered if it is an "escape mechanism" for me but whatever it is...it is.
I'm sending caring thoughts to you and your Mom and hope that her surgery on the 11th will bring positive results. Hugs. Bernadette
by retirednurse111 on Thu Jan 10, 2013 12:33 AM
On Jan 03, 2013 6:30 AM ang1235 wrote: my mom has just been diagnosed with Colon cancer and liver mets. she will have surgery Jan. 11. she has been exhausted for months, sleeps all the time and is very dehydrated, even had an episode where she passed out a few months back and the hospital assumed stroke and focused on her brain and all was clear and released. routine colonoscopy found it. I am very concerned about her sleeping all the time. dr. says it is anemia caused by the mass but I can't help but worry we won't even make it to surgery bc this is the opposite of who she normally is. this has been going on for a year now too.. :( undiagnosed. I am a nervous wreck. she is 60 and We are very close... I am so scared but tying my best to be positive and be there for her to laugh cry just hug whatever. I am not sleeping and constantly worried. I only live about 30 min away but since her diagnosis I feel I live a million miles away and just too far.
did anyone experience this extreme fatigue before treatment not as a side effect of treatments? how do you feel now aft treatments?
thank you so much!
On Jan 03, 2013 6:30 AM ang1235 wrote:
Pray pray pray! Being a nurse this does not sound good...so sorry to hear this.
Will she have an ileostomy or colostomy? I had an ileostomy, after oral chemo and radiation for colorectal cancer. Then I had IV chemo.............am now out 14 months....yeah!! Thank you God and my Blessed Mother!
You prob should seek a second opinion from KU, Mayo, or MD Anderson.........sending my promise of a prayer......Fran
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