Inoperable Astrocytoma, Stage 3 - SEVERE HEADACHES

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Inoperable Astrocytoma, Stage 3 - SEVERE HEADACHES

by LibbyBrown on Mon Jan 07, 2013 06:17 AM

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Hi All, I am new to the group and need a little help. My Dad is 64 and diagnosed with Astrocytoma, Stage 3 (inoperable) one month ago. He has 4 lesions on his brain, one next to motor skills, one next to speech and one larger one in the corpus callousness and a new one...not sure, but I think the temporal lobe. He had a biopsy done one month ago and he is scheduled to begin radiation tomorrow with Temador and we are PRAYING for Avastin. Last week, Dad started having terrible headaches. He was in the ER last Tuesday night and then we were discharged on Wednesday morning to make our journey to a brain specialty center that day. Needless to say, it was a HARD trip, but we made it home Friday night. We were given hope and told that Avastin was being recommended. The headache became increasingly worse on Friday night and we went back to the ER where he recieved pain meds and sent home. The headaches again became intolerable and now back in the hospital. In one week, Dad has become unable to walk on his own, incontinent and the headaches are excruciating. He is currently being treated for pain and out of it, but anything is better than watching the pain that he has been in with the headaches. I have a few questions and was hoping someone could help: 1) Once a brain cancer patient reaches the state that my Dad is in, will the radiation/chemo help him gain some of his normal functions back (assuming combo works)? 2) Has anyone had a positive experience with treatment for lesions that have "finger like" cells (located in corpus collosum)? Can they be stopped or go away with treatment? 3) Has anyone had these same type of headaches and been able to tolerate radiation. I am worried about further brain swelling. He is on a LOT of steroids. 4) I would love to hear any tips or alternative/complimentary treatments that you have to share. At the end of the day, all that we can do is pray and believe in miracles. Thank you for your insight and information that you are willing to share. Bless each and every one of you and your families! Libby

RE: Inoperable Astrocytoma, Stage 3 - SEVERE HEADACHES

by jpearson472 on Mon Jan 07, 2013 06:35 AM

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sorry to hear about your dad.  When you say a lot of steriods, I am assuming u mean dex.  What is his daily dose?What has this brain center said about his headaches?  They shoud have someone on call that will help out a lot more than going to the ER.  The only reason I go to the ER is if one of my oncs tells me to.

please keep us updated

josh

RE: Inoperable Astrocytoma, Stage 3 - SEVERE HEADACHES

by LibbyBrown on Mon Jan 07, 2013 06:54 AM

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Hi Josh, Thank you for response. I want to say he is on 8 mg of Dex. Since the headaches are so new, not much has been said. We went from Tylenol last week to dilaudid. We called the on call oncologist Friday night & he recommended Hydrocodone, increasing Dex and then ER if no relief. Hydrocodone did not touch his headache. Basically, his pain management has been managed poorly. I will keep you updated. Take care

RE: Inoperable Astrocytoma, Stage 3 - SEVERE HEADACHES

by jpearson472 on Mon Jan 07, 2013 04:55 PM

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what other meds is he on?  I know keppra can cause headaches.  look at the side effects of his meds.  most will list headaches

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