One patient with glioblastoma still alive nine years later
by SarahGrey on Tue Jan 08, 2013 06:13 PM
My husband has extreme fatigue - he could easily sleep 20 hrs a day... his neuro-oncologist just prescribed Ritalin for him today and i was wondering if anyone else had taken it and if it helped or if there were negative side effects?
by mikeyac48 on Wed Jan 09, 2013 06:23 PM
My wife has had an Oligodendroglioma grade 2 DX on 11/2004 followed by surgery 1/2005 followed by Rad and Temedor 1/2008 followed by Temedor 1/2012 followed by Avastin 7/2012 followed by more Temedor 10/2012 now about to start Rad again on 1/22/2013. It has been growing through all treatments and now possibly a grade 3 or even 4. She was getting fatiqued quite often and slept a lot. Her NO at Sloan-Kettering perscribed Ritalin for he and it made a big difference. She responded very well to it and made her focus more with less fatique. I hope it works for your husband
by SarahGrey on Wed Jan 09, 2013 06:49 PM
thanks mike! we picked up the prescription today (low dose, 5 mg) but my husband is against it. he doesnt think he sleeps 20 hrs a day, when he nearly does... and he thinks resting so much is good for him. sigh. i'll try again in a few days... will keep you posted!
by annieappleseed on Wed Jan 09, 2013 11:53 PM
Maybe he would consider acupuncture for fatigue? There's some decent evidence that it could help.
by SarahGrey on Thu Jan 10, 2013 01:03 AM
On Jan 09, 2013 11:53 PM annieappleseed wrote: Maybe he would consider acupuncture for fatigue? There's some decent evidence that it could help.
On Jan 09, 2013 11:53 PM annieappleseed wrote:
ahhhhhh totally forgot about that! we actually were going in the past. thanks, I'll mention it to him and try to restart him going. :) at least it's "natural" and can boost his immune system as well.
by Debbietodd on Thu Jan 10, 2013 03:21 AM
The Dr. at MDA also prescribed this for my husband. It was very, very helpful. The cancer/treatment really zapped his energy and this helped my husband be able to go about life.
Hope this helps!
by Fridge on Thu Jan 10, 2013 03:09 PM
I too had extreme fatigue from Methrotrexate, Temodar, and Rituximab for CNS lymphoma and was presecribed 5mg of Ritalin. It was amazing and I would strongly encourage your husband to give it a try. I had no side effects and was able to function through a normal work day without having to nap (although I still took one at end of work day). I wish you good fortune in your ongoing battle.
by SarahGrey on Thu Jan 10, 2013 03:13 PM
Great, thanks guys!! :)
by rdhearne on Thu Jan 10, 2013 05:43 PM
I take Ritalin for fatigue and it has made all the difference in the world. I had trouble getting out of bed in the mornings and now I no longer have that issue.
by johngiustino on Fri Jan 11, 2013 04:45 PM
I was offered this as well - maybe you are at my clinic. I was told there was slight risk it could lower one's seizure threshold - you should check on this. I was prescribed Elavil which did wonders for my energy level and other side-effect. When I started getting seizures this was dropped for the reason stated above. If Elavil caused my seizure, I was an unusual case and in hindsight I think I had the "wrong" seizure medications and it was probably not the Elavil. Please consider Elavil as well.
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