One patient with glioblastoma still alive nine years later
by mavraganis on Thu Jan 10, 2013 02:07 PM
Met with Surgeon last night, All business. 5 cm tumor on left kidney. He's done 500 Davinci's and thinks he can do partial and get the thing out. He also said that "on the fly" when he is in there he may reasses if he can't be successful with partial and take the whole thing out. I'm 59 and I think he wants to maintain part of kidney,,,,,in case.
Was there post op chemo or anything that you experienced after?
by donsmrs on Thu Jan 10, 2013 04:38 PM
Be sure to see an oncologist, on your own if necessary. If your surgeon says you are cured after a successful resection and need nothing further than the every so often scans you will; have to have, he is saying what his national organization is still saying. However, the oncologists across the country are not on that page at all. If we had gone to an oncologist regardless of what our surgeon said, in 2010, my husband would not be in the current fix. It is possible that the oncologist may want to give you a course of oral medication to kill any micrometastases that might have gotten away as the result of the surgery. (Which is how my husband's came back. You cannot see micromets. They just scatter and lurk, waiting for the best moment to start growing. There are some oral chemos available for this, a capsule you take with breakfast, for example, and you can lead a pretty normal life while getting treatment.
Having gone through this in 2010 with Don, I would personally recommend your seeing an oncologist, if there is time, preferably, even before your surgery date. Your doing this, and signing-on with the oncologist, so to speak, will allow your oncologist to have legal internet access to your surgery pathology reports, for example, and to collaborate with your surgeon in planning your care after surgery. I cannot recommend your doing this strongly enough.
As for the procedure, my husband had his whole kidney and adrenal gland removed via hand-assisted laparoscopic surgery in Nov. 2010 and did well. Word of experience: if while you are in the hospital, they tell you to chew gum to alleviate the gas after surgery, do NOT do that. My husband's belly swelled up so badly from swallowing air while chewing gum that he leaked serous fluid from every teeny incision and it cost him 2 extra days in the hospital. He had been walking all over the building. so that wan't the issue. After askin three time, I was finally able to get one of the surgeons to agree to a suppository to move the gas out that way. But they insisted Gas-X and the like doesn't work for the upper gas, and refused to order that. Not so. I started my husband on Gas-X on the way home from the hospital, and that was the END of the gas. I knew to do that because 18 years earlier, my GYN did a laparocopic hysterectomy on me and he did order both a suppository on the late afternoon of post-op Day 1 and Mylicon, (sort of like Gas-X, the whole time, and that fixed it.
Ted, please also know that for postop nausea, Zofran (generic Odansetron) is truly wonderful. BUT, what some surgeons, PA's etc. and nearly all nurses forget is that this drug only works if you have a sufficient blood level of that drug already in your system before you develop any post-op nausea. Then you don't get nauseated at all. Otherwise, if you get the drug started only when nausea develops, it may take a few doses, and a number of hours where you stay really uncomfortable, until the Zofran level is finally great enough to handle the nausea. So, for this to work, you would need to start taking this pill 24 hours in advance of your surgery. Pharmacists all know that, so do call your local pharmacist and ask about that. Then if you want the Zofran or its generic, (both are good and they don't make you feel doped up), be sure your kidney surgeon gets you started on this drug in advance of your surgery date, as my GYN did for me, 20 years ago.
Hope this helps!
by MamaB on Thu Jan 10, 2013 05:20 PM
Camy gave you some good advise.
I am sorry you have been diagnosed with kidney cancer. If at all possible, it would be good for you see an Oncologist Kidney Surgeon to remove the tumor.
I was diagnosed with a 6.6cm kidney turmor that had spread to my lungs in 2007. I took Sutent 50mg for two and a half years before the surgery. My operation was open where the Dr. could easily see what he was dealing with and he removed my left kidney and adrenal gland. I was out of the hospital in three days. I have been off of all chemo since the month before my surgery in 2010. I go for a CT, MRI and lab work every six months and so far I have gotten great results.
Keep a positive attitude, have hope and faith for a brighter future.
Wishing you the very best.
by Fairlane on Fri Jan 11, 2013 07:44 PM
On Jan 10, 2013 2:07 PM mavraganis wrote: Met with Surgeon last night, All business. 5 cm tumor on left kidney. He's done 500 Davinci's and thinks he can do partial and get the thing out. He also said that "on the fly" when he is in there he may reasses if he can't be successful with partial and take the whole thing out. I'm 59 and I think he wants to maintain part of kidney,,,,,in case.
Was there post op chemo or anything that you experienced after?
On Jan 10, 2013 2:07 PM mavraganis wrote:
I am Rudy B. a Cancer fighter, retired from the Air Force two tours Vietnam and my cancer is connected to Agent Orange, been fighting Renal Cancer going on 11 years.
Married and have 3 children. Rt kidney removed 2003, Nodule removed left lung 2004, Nodule removed RT lung 2005, On Nexavar since June of 2006, last CT scan showed no new Cancer and the two lesion on my left lung are gone. Yes Nexavar has side affects, but they can be controlled and your able to have good life and now after 7 months the effect are less.
( Up date ) Nexavar worked for 30 month and now on Torisel it worked for 12 months move on to Avastin and interferon worked 19 months now will be on Votrient wow!!!!!
Well the Votrient not working as well as my Oncologist would like, I will move on to Inlyta just approved in January of 2012. Now that how things have gone for me and I continue to be bless and I keep a positive mind.
I’ve done allot of research on New Drugs and treatment. Several studies state that treatment with Targeted Drugs before surgery after surgery have better results in keeping the Cancer at bay. I would pray that those fighting this Cancer go to a Comprehensive Cancer Center they do it all, Research, Trials, Treatment. This is what I look for and found mine here in California and so far here I am.
It's has not been easy, take this from a man who been through allot. But if you continue to fight you will live, so decide what you want and then fine a Oncologist who is up to date on Procedures and Treatments. Ask around, check and decide, manage your life. That all I can say, Hope and Pray that this helps.
There is always HOPE
Rudy B. Cancer Fighter
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