A M L

10 Posts | Page(s): 1 

A M L

by Darby10 on Fri Jan 11, 2013 09:26 PM

Quote | Reply

My husband was diagnosed with AML at age 63 in 2009.  He had several rounds of chemo and went into remission.  Came out of remission 5 months latter.  He had a bone marrow transplant in February 2011, two years ago.  Is doing fine. Older adults can with stand transplants if they are in good health otherwise. 

allaboutaml allaboutaml
(Inactive)

RE: A M L

by allaboutaml on Thu Jan 24, 2013 07:04 PM

Quote | Reply

On Jan 11, 2013 9:26 PM Darby10 wrote:

My husband was diagnosed with AML at age 63 in 2009.  He had several rounds of chemo and went into remission.  Came out of remission 5 months latter.  He had a bone marrow transplant in February 2011, two years ago.  Is doing fine. Older adults can with stand transplants if they are in good health otherwise. 

This is really good news, the fitter the better chances you have, keep me posted on his progress..

Paul

RE: A M L

by sissi288 on Sun Jan 27, 2013 07:05 PM

Quote | Reply
Hi How long we're the chemo? Did he experience extreme pains in lower back and bone marrow?

allaboutaml allaboutaml
(Inactive)

RE: A M L

by allaboutaml on Mon Jan 28, 2013 09:18 AM

Quote | Reply

I personally was on the Chemo for 4 months, and yes had discumfort inlower back (hip bone) from where the marrow was taken, but more so now funnily enough when out walking. Not sure if its related or not, I spend alot of time sat down at a desk, but have discomfort when walking for longer than 30 mins.

RE: A M L

by sissi288 on Wed Jan 30, 2013 03:22 AM

Quote | Reply
Thank you for replying. I am getting weaker, frequent bleeding and I feel all day tingling sensation in my lower back kinda like I am aging.what do you mean by walking funny. Are you on remission now?

allaboutaml allaboutaml
(Inactive)

RE: A M L

by allaboutaml on Wed Jan 30, 2013 12:16 PM

Quote | Reply

Personally I think my lower back ache is a result of sitting all day on the computer working rather than exercising, no funny walk?

Reference bleeding - when your platelets are low you may find you have nose bleeds as I did, this will be checked by doctors and your platelet levels will be monitored. Chemo injections do give tingling, especially on the first round of chemo.

Paul

RE: A M L

by sissi288 on Thu Jan 31, 2013 07:29 AM

Quote | Reply
Hi Paul, Are you fully treated? It is just too painful and I just don't know how long it will take. I got a qt prolongation on Sunday. I also have along with AML lupus, and cml. I got cml back in 2000 and was on gleevec. Sophie

allaboutaml allaboutaml
(Inactive)

RE: A M L

by allaboutaml on Thu Jan 31, 2013 09:16 AM

Quote | Reply

Hello Sophie, I'm fully treated but having 2 monthly checks. What is Lupus and what is Gleevec? Yes I'm 13 months in remission.

RE: A M L

by sissi288 on Fri Feb 01, 2013 07:24 PM

Quote | Reply

Hi,

Gleevec was consider the miracle drug 12yrs ago to treat leukemia and treating CML. Lupus is a disease, autoimmune disorder when your own cell attacks each other. And mine is the joint. With this bone marrow pain, it makes it worse.

 

I am so happy that you are finally healthy. Does it affect your life? Are you really 100% on remission. How long did you have aml then? Did you feel depressed then? I just feel like i am fighting this war alone and all i want is just locked myself away from everyone. After all, i am different from them, a burden or a parasite . I am ready to go, what is the meaning of life if i have to live with AML and surviving each day having to depend on medication? Chinese New Year is coming soon and to me it is just another painful day. I pray each day for God to let me go soon.

allaboutaml allaboutaml
(Inactive)

RE: A M L

by allaboutaml on Mon Feb 04, 2013 01:49 PM

Quote | Reply

Sorry to hear about your problems. I had the opposite, I did not get depressed when I was having chemo or when I was diagnosed. Instead I saw it as a burden and was absolutely determined to get through it, I just had to.  Everyday is a clean slate, a new beginning, a new chance to start a fresh. I did get depressed when I got out and I still can't take control of my life, I do not like being looked after so all my decisions are made for me - as long as I can make my own decisions and have control - every day is worth it. Theres always light at the end of the tunnel. 

10 Posts | Page(s): 1 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.