Newly Diagnosed in Chicago

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Newly Diagnosed in Chicago

by Chicago773 on Mon Jan 14, 2013 03:40 AM

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Hello all. My sister recently received a GBM diagnosis after surgery to remove the growth. Although she was very happy with her surgeon, I want to make sure that she receives the best possible care/treatment. I'm somewhat at a loss in my research. We are looking at Rush, NW and U of C. Does anyone have any feedback?

RE: Newly Diagnosed in Chicago

by siblingof on Mon Jan 14, 2013 02:09 PM

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You want her to be treated by a neuro-oncologist. Northwestern has a good neuro-oncology dept, I think.

RE: Newly Diagnosed in Chicago

by Steph917 on Mon Jan 14, 2013 03:02 PM

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My mom had her surgery at Mayo but to be a little closer to home for treatment and follow up appts she is seeing a neuro-oncologist at Northwestern. We live about 2 hours west of Chicago though so when we have an appt it always makes for a really long day for my mom.  Other than the drive we really like the Dr and their staff:-) 

RE: Newly Diagnosed in Chicago

by GeeBeeEm on Mon Jan 14, 2013 03:26 PM

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I go to Dr Jeff Raizer at Northwestern and have been very happy with the care there.  Feel free to send a private message if you want more info.

RE: Newly Diagnosed in Chicago

by GBMBGONE on Mon Jan 14, 2013 06:43 PM

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My wife (Dx June 2011) went to Rush Medical. Dr Robert Aiken, was her NO there and we were very happy with the care provided as well as their staff. We had tried to get into the ICT-107 clinical trial there but was excluded (due to lack of activated dendritic cells harvested). Due to logistics we currently do not go there but have a NO closer to our home for her follow ups. Best of luck to u.

RE: Newly Diagnosed in Chicago

by Chicago773 on Wed Jan 16, 2013 02:11 AM

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Thank you all for your feedback. I am so grateful to have found a support group with so many caring, knowledgeable folks.

RE: Newly Diagnosed in Chicago

by herrmajo on Wed Jan 16, 2013 06:13 AM

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We didn't have a neuro-oncologist but our oncologist and radiation oncologist were very up on GBM. They worked so well together and they did phone conferences with some of their neuro-oncologists collegeauges at Mayo and I forget where else anytime there were some major decisions about treatment steps just to double check their decisions. I wish everyone who battles this disease were as fortunate to have a team like we did, something odd came up, did not have to wait a day for a response from either one, the phone call would come from them lickety splits. With some the travel is just not possible with someone with GBM.

Prayers to all of you battling this disease.

RE: Newly Diagnosed in Chicago

by Leeland on Fri Jan 18, 2013 02:03 AM

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Hi, I am post 2.5 years had surgery, radiation and Chemo.  I go to Loyola Medical in Maywood.  They have a very good Cancer center there.  They put together a team for you so all doctors are working together.  When I go in I see all three doctors the same day my nuero, ocologist and my radiologist. All the hospitals you listed are very good, I went with Loyola because they were the ones to finally diagnose my brain tumor.  Good Luck LEELAND

 

RE: Newly Diagnosed in Chicago

by Amcf1 on Fri Jan 18, 2013 03:26 PM

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My husband sees dr. Raizer at northwestern. On a side note, every third Monday of the month we go to support group there (21st floor) - most patient are treated at NW but not everyone. Why don't you and your sister come on Monday 5pm and you could get more info for your questions. All the best, Annie

RE: Newly Diagnosed in Chicago

by Chicago773 on Thu Jan 31, 2013 02:30 AM

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Thanks to everyone for your responses. Things have not been progressing well unfortunately. We decided to have the radiation treatment at another Chgo hospital. Three weeks post diagnosis and still no treatment! Only additional tests, consultations and time, when this was to be coordinated with the neuro-oncologist. Treatment was to begin today and the most recent MRI found another growth. Now it's back to Rush for additional surgery. I am so disgusted with our medical system and only want to find the best care for my sister. Do we need to go outside of Chicago?!
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