glioblastoma

4 Posts | Page(s): 1 

glioblastoma

by slv8cb on Mon Jan 14, 2013 02:36 PM

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My sister in law is 1 year out from surgery for glioblastoma. she has been on 5/23 schedule of temodar for 1 year and her dr. is discontinuing it as she was told she could develop other cancers from it. She has tolerated well and i am concerned about discontinuing it as long as she is tolerating it.  Any views as to how long to stay on temodar?  

RE: glioblastoma

by Ducks-n-Row on Mon Jan 14, 2013 04:03 PM

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Of course the medication effects us all different. I took temodar for 2 years as my body did tolerate it fairly well. At the end I was exhausted and told my Dr that was enough. I HOPE this helps......

HOPE

Damon

Dx Nov 07.......No regrets

RE: glioblastoma

by Bruce_Edward on Tue Jan 15, 2013 01:30 PM

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Hi, My daughter was on Temodar for 18 months. She had little issues. She received an injection to boost her blood counts that worked wonderfully..each month that she took the temodar. She just celebrated her 5 year post GBM diagnosis! Diagnosed at age 20 and know she is 25! Doing great and loving life! Keep the Faith and keep loking forward! Prayers to you. Bruce

RE: glioblastoma

by siblingof on Tue Jan 15, 2013 03:39 PM

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Congrats to your sister on making it so long without recurrence. A concern is that she could develop leukemia from longterm Temodar use. I know a guy with GBM who stopped Temodar after 12 months, six months ago. He still hasn't had a recurrence.
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