Tonsil problems and a host of other symptoms.

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Tonsil problems and a host of other symptoms.

by kieron1709 on Wed Jan 16, 2013 09:15 AM

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Hello,

I hope you can help me, I'm new to this site and I'm looking for a little advice / reassurance.

In November 2011 whilst working in Asia I became ill with suspected Avain Flu. Since this point onwards I have suffered with extreme fatigue, sore throat, swollen glands, (groin, neck, underarm), muscle and joint pain, headaches, sore neck, nausea, etc.

I initially saw a respiratory specialist who identified a nodule on my left lung, belived to be either a swollen gland or calcified nodule.

I was then referred to an infectious disease specialist and all manner of blood tests commenced.

I have been tested for Dengue, Tb, HIV, Melioidosis and many more diseases.

Bloods showed anti body count slightly elevated for Melioidosis, Epstein Barr and Influenza. They also showed a reduced RBC count and elevated WBC count.

All through this my left tonsil has been mishaped and occasionally pus comes from it.

Over the last week My ear became very painful and jaw joint feels swollen, also my jaw and cheek has a numb sensation. The tonsil has recently reduced in size. My arm feels painful and I have the sensation of lots of gland activity in the neck and collar bone area.

It has been confirmed that my ear canal is very mishaped and full of pus. I have been given anti biotics.

I now have more swollen glands appearing on the back of my neck.

I have had my glands checked via ultra sound 3 weeks ago and I'm due to go back to have them checked again on the 25th of Jan 2013.

I have a history of Lymphoma in my family and I am concerned that to date no one has performed a biopsy on any of the glands or taken a CT / MRI of my head and neck region. I am worried that the tonsil issue may have progressed inwards towards my neck, throat, ear etc.

No one seems to be taking this seriously though.

Current working diagnosis is Chronic Fatigue Syndrome induced by Viral illness / stress.

Should I be insisting on a biopsy and CT's now?

The glands have been swollen for over 12 months and two of them in my neck are very hard and tender, any exertion makes them throb and hurt more.

I hope you can help me.

Regards,

Kieron.

P.S. 41 year old male from the U.K. used to smoke about 10 cigarettes a day.  

RE: Tonsil problems and a host of other symptoms.

by Gonnabeatit on Sun Jan 20, 2013 12:44 AM

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I would definately request a biopsy, especially with a history in the family. My husband suddenly developed a lump in his neck. We got right on it within 2 days due to the weekend. The doctor ordered antibiotics and a c-scan right away. He sent us on to a ears, nose, throat specialist that didn't think it was any big deal. My husband had one needle biopsy into his neck, followed by 3 surgical biopsies. The last one fortunately was done at the CTCA in Zion. They got the results and it was a type of lymphoma. His was hard to diagnose and took from mid July until we got to Zion in Oct. It was so good we went there. Your situation has several similarities to my husbands. He too had been sent to an infectious disease specialist that checked him for TB. That test took 9 weeks to know for sure. He was negative on that.. Have you been to the dentist and had your teeth checked? Some problems start in the mouth and then spread. We worked closely with our dentist and he was a big help. You maybe need to request the doctor to do a biopsy. It is your life so you need to be your best advocate or get someone to help you. Best to you.  By the way, my husband's was an aggressive lymphoma but we caught it in 1st stage, got it treated at CTCA and he is doing great and in remission.

RE: Tonsil problems and a host of other symptoms.

by kieron1709 on Sun Jan 20, 2013 10:54 AM

Quote | Reply

On Jan 20, 2013 12:44 AM Gonnabeatit wrote:

I would definately request a biopsy, especially with a history in the family. My husband suddenly developed a lump in his neck. We got right on it within 2 days due to the weekend. The doctor ordered antibiotics and a c-scan right away. He sent us on to a ears, nose, throat specialist that didn't think it was any big deal. My husband had one needle biopsy into his neck, followed by 3 surgical biopsies. The last one fortunately was done at the CTCA in Zion. They got the results and it was a type of lymphoma. His was hard to diagnose and took from mid July until we got to Zion in Oct. It was so good we went there. Your situation has several similarities to my husbands. He too had been sent to an infectious disease specialist that checked him for TB. That test took 9 weeks to know for sure. He was negative on that.. Have you been to the dentist and had your teeth checked? Some problems start in the mouth and then spread. We worked closely with our dentist and he was a big help. You maybe need to request the doctor to do a biopsy. It is your life so you need to be your best advocate or get someone to help you. Best to you.  By the way, my husband's was an aggressive lymphoma but we caught it in 1st stage, got it treated at CTCA and he is doing great and in remission.

Hi, thank you so much for your reply,  I'm so pleased to hear your husband is doing well. I will request a needle biposy of a neck gland on the 25th. I forgot to mention that I had a little alchohol over Christmas, (previously haven't drunk at all) and immediately had pain in the glands! The most noticeable symptoms remain extreme fatigue,  aches and pains, nausea, headaches and muscle / joint pain. As I am not losing significant weight, (always been slim at 6 ft 1 inches and 61Kg) and dont have itching or night sweats no one seems interested in the medical field. My dentist checked my teeth two months ago, (fine at the time) and expressed a concern when looking at my tonsil. I think ill also try and get a ct / xray of my jaw, teeth and ear area. Thanks again and I'll let you know how I get on. Rgds, kieron. Ps I am frustrated in the time all of this has taken as I first went home from work feeling unwell on Sept 10th 2012. I appreciate the infectious disease tests take time but it's now ridiculous.  

RE: Tonsil problems and a host of other symptoms.

by kieron1709 on Mon Jan 21, 2013 03:36 PM

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Hello gonna beatit, I wondered if I may be able to send you some photos via mail? Ibreally value your opinion having been through this with your husband.  My mail is:

Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html 

Regards,  kieron.

RE: Tonsil problems and a host of other symptoms.

by Hopetorun on Fri Jan 25, 2013 10:25 PM

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I had squamous cell cancer in my left tonsil and spread to my lymph nodes on the left side of my neck.   The cancer was spotted quite easily by my Ear, Nose and Throat doctor.  He also took a small piece and had it tested to confirm what he saw.  So I would highly recommend seeing an ENT doc to look at your ears and tonsil, and probably have them biopsyed to test for cancer/other diseases.  Good luck.

Jeff Thompson

RE: Tonsil problems and a host of other symptoms.

by kieron1709 on Fri Feb 01, 2013 07:37 PM

Quote | Reply

On Jan 25, 2013 10:25 PM Hopetorun wrote:

I had squamous cell cancer in my left tonsil and spread to my lymph nodes on the left side of my neck.   The cancer was spotted quite easily by my Ear, Nose and Throat doctor.  He also took a small piece and had it tested to confirm what he saw.  So I would highly recommend seeing an ENT doc to look at your ears and tonsil, and probably have them biopsyed to test for cancer/other diseases.  Good luck.

Jeff Thompson

Hi,

I went for another ultrasound on the 25th of January.

They confirmed evidence of trauma to my parotid gland, (maybe due to a recent ear infection) and said that my thyroid appeared to be a different shape since the scan one month ago. I was given Amoxcicillin for the ear, the infection appeared to clear but glands are the same if not more swollen. Am I right that Penicillin can cause this?

Over the past two weeks my abdominal pain has increased slightly along with the ability to eat less food, (I feel full quickly). I have a tender feeling in my left groin / testicle, Shoulder joints and rear of the neck are very painful. I also get stabbing pains in the rear of the neck and have found swollen glands near to the pain source.

The main element of pain is coming from my trachea / thyroid area. I am also coughing still.

I am confused and very worried as to how my symptoms are so wide spread.

Over the last week my cervical glands next to the thyroid have swollen on the right hand side, (up until now I have had no activity on the right side). The ultrasound also showed Sub Clavicular gland swelling on both sides now.

The newly swollen glands on the right are schotty, moveable and around 1cm x 1cm.

I have an area on the neck glands to the left of my Adams apple that appears to be hard, difficult to move and possibly matted, (the person who performed the ultrasound commented). It is about 2cm by 1.5cm.

As soon as I take pain releief I can feel the improvement all through my body, If I forget to take pain relief I very soon feel a lot of throbbing and pain all over.

I am due to see the infectious disease specialist on 18/02 and then go back for an ultrasound again on 21/02.

As my pain seems to be developing and symptoms growing I am due to see the doctor on 05/02.

I am going to ask if they can perform CT, MRI and maybe a biopsy of the hard gland, I feel that waiting until the 18th is too far away but value peoples opinions and experiences on here. I am not really sure where to start though!

Thanks,

Kieron.

RE: Tonsil problems and a host of other symptoms.

by kieron1709 on Mon Apr 29, 2013 10:22 PM

Quote | Reply

On Feb 01, 2013 7:37 PM kieron1709 wrote:

On Jan 25, 2013 10:25 PM Hopetorun wrote:

I had squamous cell cancer in my left tonsil and spread to my lymph nodes on the left side of my neck.   The cancer was spotted quite easily by my Ear, Nose and Throat doctor.  He also took a small piece and had it tested to confirm what he saw.  So I would highly recommend seeing an ENT doc to look at your ears and tonsil, and probably have them biopsyed to test for cancer/other diseases.  Good luck.

Jeff Thompson

Hi,

I went for another ultrasound on the 25th of January.

They confirmed evidence of trauma to my parotid gland, (maybe due to a recent ear infection) and said that my thyroid appeared to be a different shape since the scan one month ago. I was given Amoxcicillin for the ear, the infection appeared to clear but glands are the same if not more swollen. Am I right that Penicillin can cause this?

Over the past two weeks my abdominal pain has increased slightly along with the ability to eat less food, (I feel full quickly). I have a tender feeling in my left groin / testicle, Shoulder joints and rear of the neck are very painful. I also get stabbing pains in the rear of the neck and have found swollen glands near to the pain source.

The main element of pain is coming from my trachea / thyroid area. I am also coughing still.

I am confused and very worried as to how my symptoms are so wide spread.

Over the last week my cervical glands next to the thyroid have swollen on the right hand side, (up until now I have had no activity on the right side). The ultrasound also showed Sub Clavicular gland swelling on both sides now.

The newly swollen glands on the right are schotty, moveable and around 1cm x 1cm.

I have an area on the neck glands to the left of my Adams apple that appears to be hard, difficult to move and possibly matted, (the person who performed the ultrasound commented). It is about 2cm by 1.5cm.

As soon as I take pain releief I can feel the improvement all through my body, If I forget to take pain relief I very soon feel a lot of throbbing and pain all over.

I am due to see the infectious disease specialist on 18/02 and then go back for an ultrasound again on 21/02.

As my pain seems to be developing and symptoms growing I am due to see the doctor on 05/02.

I am going to ask if they can perform CT, MRI and maybe a biopsy of the hard gland, I feel that waiting until the 18th is too far away but value peoples opinions and experiences on here. I am not really sure where to start though!

Thanks,

Kieron.

Hello, I wanted to update everyone who's helped me on here.

I finally had my Biopsy, (small cervical node removed from the neck) and then had to wait one month for the results, the suspense was terrible!

I finally got my results and was shown the report. It said no evidence of Lymphoma or carcinoma. I was delighted and relieved. I also then got a letter from my Infectious disease specialist saying after reviewing the report she can rule out any infectious disease as the casue of my illness.

I am a little confused and want to seek reassurance that a biopsy of one node is adequate to reach these conclusions.

I still have nodes that can be easily felt under the arm, above my collar bone, back of the neck, groin, upper thigh and elbow.

I am particularly concerned as recently I have has more extreme stomach aches, my bowel habits have changed and a number of quite large nodes have popped up in my groin and upper thigh area, (2cm x 1.5cm). Both my doctor and the ID specialist do not appear concerned at all. They are suggesting chronic fatigue now diagnosed by exclusion, but I am confused why I would be getting new symptoms and new Lymph nodes swelling after 8 months off work resting and eating well.

I asked if someone should perform a CT scan on my abdominal area and they said it's not required.

Should I ask for more to be done or relax and know that cancer has been confidentally ruled out?

Thanks,

Kieron.

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