One patient with glioblastoma still alive nine years later
by Bee_Rich on Thu Jan 17, 2013 02:47 AM
been lurking for a few months and finally registered.
thanks for all the posts . you help more than you know.
decided to stay hometown at U of Fla for trtmt.GR 2-3 diffuse infiltr AA RH parietal + dx 9/24/11. no surgery avail. bleed after biopsyresulting in weeks in rehab for LH motor lost. still not back yet. sorry for poor typing!
finish first temodar + photon rads in 1 week. also doing supplements &nutritive diet +juicing/nutriblasts, boy does THAT make for room clearin toots!
peace n chicken greease
by Bee_Rich on Thu Jan 17, 2013 03:09 AM
hey, no edit function!?
forgot to mention my lovely bouts of seizures & now myoclonus tremors b/c of post biopsy bleed. my epileptologist is now my best friend, lol.
4 seizuremeds. cant remember names right now.
by Bee_Rich on Thu Jan 17, 2013 03:21 AM
sorry, i was dx in 2012 NOT 2011 like in my post.
gr8... what a way to start in here.. but hey ..i have a brain tumor..whats ur excuse? lol
by tromda on Thu Jan 17, 2013 09:47 PM
I'm always kind of amazed at how every body has kind of a little different twist on the same story... Different symptons, different reactions, different treatments.
Good luck to you, I hope that with time and your healthy diet, your symptoms will improve.
Loved your peace and chicken grease comment.
by allyouneedislov on Thu Jan 17, 2013 10:15 PM
Bit of a lurker myself!
My son has GBM diag 05/09 just had 2nd surgery for reacurence ( ? no spell check on here) at Shands, UF he is also on several siezure meds - he's 29 and now going to do some more chemo, he is a 3 yr survivor , hang in there,
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