My husband with glioblastoma has been in the hospital for 13 days ... he had a lot of vomiting and had a seizure the morning after his third day of temodar - this was his fourth round.
We have already wasted 3 months with him feeling too nauseous and tired to leave the house or even out of bed sometimes, since his 3rd round end of October.
MRI shows no new growth in tumor but swelling on the other side of the brain. (Note: he is on avastin too)
Neurologist hasn't bothered to come see him despite repeated requests by various hospital staff.
They expect him to remain in hospital until next Tuesday. Finally began to hold down a little food and liquid just the last couple days, they were ready to do a feeding tube.
When he had an 80% resection at diagnosis last June they told him he had 12-15 months and his tumor was growing fast. To him that means he may only have 6 months left.
He is seriously considering discontinuing chemo in an effort to have a real "life". He is getting a wheelchair and he says if he were well enough we could go places again and he could enjoy whatever time he has. He knows he could then have hospice and subsequently have whatever he needed to be comfortable.
I would appreciate your input. If no one wants to touch this subject with a ten foot pole I understand that too.
Thank you.
Lisa