The BEST neuro oncologists for GBM

Many patients are searching for the best neuro oncologists to treat their GBM.  So, why not share the name of your NO and the facility where they practice.  Let's give these physicians the recognition they deserve.  I will start with Dr. Linda Liau from UCLA.  She was incredibly responsive when we were searching for the best treatment! 

Dr. Liau is a gem.  I have much contact with her.

I work with Dr. Edward Arenson at the Colorado Neurological Institute Center for Brain and Spinal Tumors in the Denver Metro Area.  He is fantastic and treats very aggressively.  He doesn't rely on just the standard of care as most know is temodar and radiation.  He is a very caring and compassionate neuro-onc.

My husband's NO is ok... 

If we could have any doctor in the country, we would have Dr. Keith Black, at Cedars in LA.  He's a leading neuro-surgeon (was in Time magazine...) for brain cancers, especially GBM.  We tried to have him take over my husband's case but was told "it doesn't work that way."  If he did surgery on my husband, he could take over but...  alas, my husband's tumor is inoperable (they gave us a 2nd opinion and agreed.)

My husband was treated by Dr. John Yu at Cedars Sinai.  He was excellent.  He works with Dr. Black's team.  I highly recommend Cedars.  It is an impressive facility!

I second John Yu at Cedars. Most of the people mentioned thus far are surgeons not NO's.

Think Dr Hu is the NO at Cedars...I think

For NO I would recommend Dr Kaley at Sloan. He is hopeful, good humored and generally good natured.

In my opinion NO’s are more less cheerleaders. They try something if it doesn't work they try something else. I could probably be my own NO for the most part.  There aren't that many Meds to choose from.

Any NO who makes those periodic scan reviews slightly less excruciating is aces in my book.

Hux

 

John Yu is excellent - great reputation and very responsive. Cedar Sinai doctors are ver responsive. Dr. Liau was very responsive when she did a film review with her. Would be nice to get NOs who are aggressive for initial diagnosis. Looks like sandals radiation and temador is just a stop gap till recurrence occurs and it is time to really try things. Would be better to try things at the beginning. For us recurrences have shown such big and fast growth that tere is little time to analyze all options and choose the bet one.

Dr. Linda Liau is a fabulous neurosurgeon.  We went to her because the other hospital said my husband's tumor was inoperable... and that was in September 2006.  The whole team is great - Dr. Cloussey is the neuro oncologist, and Dr. Selch did the radiation surgery (3D mapping).  

He has had a couple rucurrences since then, had a second surgery, and has stable MRI's now.  (on Avastin, as Temedor quit working a year ago.)

Good luck on your search and go with who you feel comfortable with agreement on your point of view and goals.