Although most said they'd let their physician know if asked, survey finds
by ravirajagopalan on Sat Jan 19, 2013 08:56 PM
by oceanswimmer on Wed Jan 23, 2013 02:36 AM
My son had stereotactic radiation after 3rd resection, but I don't think it did any good in his case. I don't think it did any harm, either. He didn't have any side effects except a little more hair loss where the hair was already very thin from radiation in the past. (It was hard to tell if it left him more tired, as he had just had a third resection, and surgeries # 2 and 3 were just two months apart.) I believe that studies show that it can help, and that the brain can tolerate more radiation than what is considered to be maximum dose. I know that there are concerns for long-term effects.
I looked at various articles/studies before my son had his and felt comfortable that it was the right decision. If you do web search for "stereotactic radiation recurrent glioma" you will find some studies and articles.
I was also comfortable trusting his doctors' recommendations, and we were looking for continuing treatment options with less toxicity. The hope was to knock it out and buy him some more time, but he had more progression a couple months later.
by jpearson472 on Wed Jan 23, 2013 04:52 AM
Well I got fitted for my mask today for strt. I will be starting it this week. my onc team is planning on five treatments. Then a scan a month after treatment. This is my second recurrance, with the monster. Avastin kept it at bay for 10 months and the regrowth, thank god was caught extremely early so we are hoping this will buy me some more time
by ravirajagopalan on Wed Jan 23, 2013 06:19 AM
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