One patient with glioblastoma still alive nine years later
by LeeLaurie646 on Sun Jan 20, 2013 07:16 PM
by aus6321 on Wed Jan 23, 2013 05:56 AM
Have they done any blood tests that look at IgG4 levels?
by bestfriendmom on Wed Jan 23, 2013 04:47 PM
I am so sorry that you have had such a terrible time with the doctors. The only thing that I can tell you is to keep going until you find a doctor who is willing to do something for your husband. When my mom got sick one of the doctors told us that he didn't know why we were trying so hard to do anything for her since she was going to die in a less then a year. I found new doctor who believed that he could beat her cancer. A year later we are still fighting this horrible cancer. It has now spread to her liver but the doctor has not given up. I do not know where you live but I would go to a hospital like the Cancer Center of America or a place that only deals with cancer patients. We are lucky that we live 50 miles from Moffitt Cancer Center where she is getting the best care possible.
You and your husband are in my prayers.
by philipstphilip on Thu Jan 24, 2013 07:41 PM
My wife has stage 3 panceatic cancer and has been on the folfirinox regimine since last november. She has a tumor the size of a golfball that hasn't responded well to the current chemo. Our Doctor refered us to Dr. Evans at Froedert & The Medical College of Wisconsin. If you google him you'll see his accomplishments. He is one of the best in the midwest and more. He might be the guy you're looking for.
by LeeLaurie646 on Sat Jan 26, 2013 08:22 PM
by bestfriendmom on Mon Jan 28, 2013 01:34 PM
I dont think believe the doctors dont' care. I think that with this type of cancer so many doctors just dont' know about it and the strides that have been made in the last few years. Until I got my mother to a doctor who knew about PC and knew how to treat it, I was extreme frustrated with them. They all keep telling me the same thing we will make her as comfortable as possible but she is going to die and there was nothing they could do about it. Now that we are at Moffitt Cancer Center the doctors never talk about her dying they talk about what they are going to do to cure her cancer. Find the doctors that have the balls to fight and dont' give up until you do.
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If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
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