One patient with glioblastoma still alive nine years later
by CatherineAngus on Mon Jan 21, 2013 12:21 AM
Angus (Stage 4 adenocarcinoma with liver mets, dx Mar 2012, Whipple April 2012) had a liver radioembolization with Yttrium-90 microspheres on Nov 20th 2012, and just thought I would share our experience here in case it was helpful for anyone.
The procedure itself was painless, but the recovery - almost 6 weeks to the day, as predicted by the interventional radiologist - was very hard. He slept for about 4 weeks solid, lost about 6kg, had bad sweats and fevers, hallucinations, nausea, and of course liver pain. Then, as if emerging from a fog, he suddently began to get better and was able to have a relatively normal Christmas. Energy has been great, nausea abated, still some abdominal pain (which could of course be the result of his Whipple), but no sweats and excellent appetite and generally good constitution.
Although the radiologist said that you couldn't really tell if it was 'working' for at least 3 months, and tumour necrosis can continue for up to a year (!), we saw our oncologist on Friday and were absolutely delighted to hear that the CEA was halved, and the CA19.9 dropped from 3000 to 900.
So, I just wanted to share this information and to let you all know that if you have any queries about this, please let me know and I shall try and answer.
With this targeted therapy, our supplements, and traditional Chinese medicine, we are hoping that the integrative approach will work for us...
Stay strong and positive everyone: Cancer Fighters Thrive!
Catherine & Angus
by Colbert on Thu Jan 24, 2013 08:48 PM
What supplements are you taking? Tell me more about the Chinese Medicine? Thank you for sharing your POSITIVE experience!
by Colbert on Fri Jan 25, 2013 06:03 PM
Have you had experience with this treatment?
by Margienagel on Fri Feb 01, 2013 07:09 PM
Hi Catherine and Angus. I'm new here and joined because my husband, Jim, as stage 4 pancreatic cancer with a few spots on his liver. I'm also new to all this terminology. What is a whipple and a radioembolization with Yttrium-90? Jim goes into the IR once a week to have his abdomen drained. It accrues about 6 liters of fluid each week. They have recommended that he have a drain inserted so that it can drain at home. He has rejected this idea because bathing could cause infection problems and taking a bath relieves the pressure in his abdomen. Jim is also in a clinical trial using a Gemzar and Abraxane chemo cocktai. His tumor marker months ago was at 246,000. It is now down to 12,000. He even gained a few pounds but is still quite skinny. Any information you can give me would be so appreciated. Thank you. Margie
by cpmty on Fri Feb 01, 2013 07:49 PM
YES, can someone tell me or explain more. please ? (chinese medic. and herbal treatments?)
by bvan1 on Mon Feb 04, 2013 05:29 AM
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