One patient with glioblastoma still alive nine years later
by courageforbro on Tue Jan 22, 2013 09:36 PM
this is the hardest thing I have ever had to go through in my life. I thought I could deal with the fight which has went on for 7 years now. Me and my family have all been there to fight. But we all have totally lost it including my brother. We don't loose it in front of him but we are loosing it. He was given 4 months after finding out at thanksgiving that the cancer (kidney) returned with a vengence in his brain. He was receiving radiation but they stopped it last week because it doing more harm then good.
so now the fight to live for my brother is over and we are falling apart. I never hardly cried before when he was fighting... now I cannot stop.
He is declining rapidly and is starting 24 hour hospice today. I think the hardest part for me right now is to see my strong and feerless mom falling apart. I have never seen her like this before and its hard.
My sister in law won't let her in the house to see him most days because he doesn't get out of bed. I don't understand why my mom can't go visit if he is in bed... but my sister in law doesn't let her. They don't get along so this is making it worse between them.
I thought after they quit the radiation last week that he would start feeling a little better but it got worse.
by SarahGrey on Tue Jan 22, 2013 10:18 PM
what??? i am appalled... it is not your sister-in-law's decision, it's your brother's. and at this time, when things are getting bad, your mother should be allowed time with her child. can your brother speak to her on the phone? if he does want to see her, he needs to tell his wife. God, how horrible if he feels all alone because his wife wont let anyone visit? something similar happened in my family many, many years ago - my uncle never knew so many family members were trying to see him because his wife kept them away - and then it was too late...
i'm so sorry that your family is suffering like this and then has to deal with silly drama on top of it...
wishing you all the best...
by courageforbro on Wed Jan 23, 2013 02:28 AM
my brother is sedated, mom did get in today to sit with him and she said he slept all the time. My mom is having a hard time... she cries if she can't see him, she's worse after she did see him today. all of this is so very sad.
thank you for your message sarah
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