oligodendroglioma gradeII

11 Posts | Page(s): 1 2  Next 

oligodendroglioma gradeII

by flwdlw on Wed Jan 23, 2013 06:51 PM

Quote | Reply

My husband was diagnosed in 2002 w/ an oligodendroglioma II.  He had surgery (95% resection), 5 years later it grew back (2007) he had radiation treatment for six weeks then an MRI every year after. in 2011 it grew once more he did about 9 months of chemotherapy (3 differant types) and it kept slowly growing.  In Jan. 2012 he had his second resection again 95% resected.  He is currently taking Temodar 3 weeks on 1 week off. (since may2012). In Nov 2012 his MRI showed that the tumor has started growing again.  I don't know how much longer he can stand to do the chemo.  We think it's working and than it grows again.

RE: oligodendroglioma gradeII

by shariv on Wed Jan 23, 2013 07:40 PM

Quote | Reply

I'm sorry you and your husband are going through this. I have an oligo and have had 2 surgeries (2008/2009), chemo/radiation and then 6 months of chemo (temodar). The tumor was stable until May 2011. My dr said I would need to get on a different chemo if the tumor was larger in Sept. I got all of these "signs" to go on this whole food, plant based diet and started that in early June. The MRI in Sept showed no growth and there hasn't been any growth since. That is what worked for me. The diet isn't easy, but it's worth it. It's basically a vegan diet (no animal products) with no sugar, junk food. If you want more information, watch the movie "Forks Over Knives". It is amazing! You can watch it free at this link:

 
Take care of your husband and yourself! Praying for you both!

RE: oligodendroglioma gradeII

by KrysannTHEmum on Wed Jan 23, 2013 07:47 PM

Quote | Reply

sorry to hear that your husbands Oligo is continuing to grow...we are all praying that one day we can have a cure for this relentless tumour...I will think about and pray for you both and hope that the chemo may eventually work or that some new treatment will become available for Oligo's...4 years since my diagnosis and I am fighting for Many more to come!!! hang in there...!! hugs!!

RE: oligodendroglioma gradeII

by karynk on Thu Jan 24, 2013 03:32 AM

Quote | Reply

Is it still considered only a grade 2 from the surgery last year?  Which chemos did they try on the 9 months back in 11?  Your husband's history seems pretty similar to what my husband went through.

RE: oligodendroglioma gradeII

by flwdlw on Thu Jan 24, 2013 08:41 PM

Quote | Reply

He did the Temodar 1 week on 3 off. Avastin, cpt11.

He is currently taking Temodar 3 weeks on 1 week off.  After the surgery in 11 they said it wasn't quite a III so they still call it a II. He does have the 1p19q crom deletion, they say the temodar is the best thing for it but so far it's still growing.

RE: oligodendroglioma gradeII

by karynk on Thu Jan 24, 2013 10:01 PM

Quote | Reply

How does he do on the Temodar?  My husband only made it 3 rounds on Temodar when his was a 2 due to blood counts and he said forget it because of the side effects.  He did best on carboplatin actually.  His last NO had suggested Procarbazine which is one drug in the PCV combo.  My husband died in November, due to many complications, but his tumor (which ended up being an anaplastic oligoastrocytoma) really didn't respond very well to any chemos other than a clinical trial.  He did best on radiation, and had 2 full rounds 8 yrs apart.  I see you added me as a friend - so the history of meds are in my profile.  He had both deletions as well.

RE: oligodendroglioma gradeII

by flwdlw on Sun Feb 10, 2013 07:53 PM

Quote | Reply

On Jan 24, 2013 10:01 PM karynk wrote:

How does he do on the Temodar?  My husband only made it 3 rounds on Temodar when his was a 2 due to blood counts and he said forget it because of the side effects.  He did best on carboplatin actually.  His last NO had suggested Procarbazine which is one drug in the PCV combo.  My husband died in November, due to many complications, but his tumor (which ended up being an anaplastic oligoastrocytoma) really didn't respond very well to any chemos other than a clinical trial.  He did best on radiation, and had 2 full rounds 8 yrs apart.  I see you added me as a friend - so the history of meds are in my profile.  He had both deletions as well.

So sorry for your loss.

My husband has a few side effects. His doctor wants him on it for at least a year. He went 5 mon. had to have a break. March will be one year than he has another MRI in April.  His side effects are mostly loss of appetite, he still eats decent, just not as much food, memory issues, and temper problems which also has to do w/ where the tumor is located. He did radiation as well that was back in 2007.  The doctors said you usually don't do radiation on the brain more than once unless it's a last resort.

RE: oligodendroglioma gradeII

by pengi on Mon Feb 11, 2013 05:02 PM

Quote | Reply

Sounds like you've been through a long rollercoaster with this. I will have to agree with Shariv.... embracing a plant-based diet with no processed sugar has shown to be effective in my dad's and my cases. My dad is a oligo-astrocytoma grade IV survivor of 17 years who has been stable the last 16 years (after one surgery and 8 months PCV chemo), and he currently runs marathons. I have been through surgery, 2 years of Temodar, another surgery and just recently finished 6 weeks radiation to find that it is shrinking.

Doctors won't say that eating a certain way will help prognosis and treatment. But it certainly can't hurt, and the numbers of near-death cancer patients beating cancer from changing their diet are out there. If it's hard for your husband to go straight-vegan (as it was for me), you can start cutting out soda and sugary things little-by-little (look up the Ketogenic diet), and adding more greens, less red meat to his weekly diet.

http://abcnews.go.com/Health/chicago-hot-dogs-butt-cancer-bi

RE: oligodendroglioma gradeII

by karynk on Mon Feb 11, 2013 05:39 PM

Quote | Reply

On Feb 10, 2013 7:53 PM flwdlw wrote:

On Jan 24, 2013 10:01 PM karynk wrote:

How does he do on the Temodar?  My husband only made it 3 rounds on Temodar when his was a 2 due to blood counts and he said forget it because of the side effects.  He did best on carboplatin actually.  His last NO had suggested Procarbazine which is one drug in the PCV combo.  My husband died in November, due to many complications, but his tumor (which ended up being an anaplastic oligoastrocytoma) really didn't respond very well to any chemos other than a clinical trial.  He did best on radiation, and had 2 full rounds 8 yrs apart.  I see you added me as a friend - so the history of meds are in my profile.  He had both deletions as well.

So sorry for your loss.

My husband has a few side effects. His doctor wants him on it for at least a year. He went 5 mon. had to have a break. March will be one year than he has another MRI in April.  His side effects are mostly loss of appetite, he still eats decent, just not as much food, memory issues, and temper problems which also has to do w/ where the tumor is located. He did radiation as well that was back in 2007.  The doctors said you usually don't do radiation on the brain more than once unless it's a last resort.

It was a risk to do a second round of radiation, but since he never did very well on chemos he took it.  In the end it gave him almost 3 yrs of quality of life w/o having to be on chemos.  I know that his last NO said that it's becoming more common to do a 2nd round on longterm BT patients.  It managed to stop his seizures for 2.5 years as well.

-Karyn

RE: oligodendroglioma gradeII

by flwdlw on Mon Feb 11, 2013 08:44 PM

Quote | Reply

On Feb 11, 2013 5:02 PM pengi wrote:

Sounds like you've been through a long rollercoaster with this. I will have to agree with Shariv.... embracing a plant-based diet with no processed sugar has shown to be effective in my dad's and my cases. My dad is a oligo-astrocytoma grade IV survivor of 17 years who has been stable the last 16 years (after one surgery and 8 months PCV chemo), and he currently runs marathons. I have been through surgery, 2 years of Temodar, another surgery and just recently finished 6 weeks radiation to find that it is shrinking.

Doctors won't say that eating a certain way will help prognosis and treatment. But it certainly can't hurt, and the numbers of near-death cancer patients beating cancer from changing their diet are out there. If it's hard for your husband to go straight-vegan (as it was for me), you can start cutting out soda and sugary things little-by-little (look up the Ketogenic diet), and adding more greens, less red meat to his weekly diet.

http://abcnews.go.com/Health/chicago-hot-dogs-butt-cancer-bi llboard-highlights-colon/story?id=15920567"" target="_blank" rel="nofollow">http://abcnews.go.com/Health/chicago-hot-dogs-butt-cancer-bi target="_blank" rel="nofollow">http://abcnews.go.com/Health/chicago-hot-dogs-butt-cancer-bi

I've been trying to add more veggies into things but he doesn't like that to much.  I will look up the ketogenic diet though.  Thanks.

11 Posts | Page(s): 1 2  Next 
Subscribe to this message board discussion

Latest Messages

View More

CancerCompass Survey

If you were considering traveling for cancer treatment, which headline would you find more interesting?

Get $75 for taking a research survey

We care about your feedback. Let us know how we can improve your CancerCompass experience.