Hi, I am new to this board and brain cancer in general.
For those diagnosed with this what is/was your initial course of treatment? What did your pathology report say? I have noticed some on the these boards refer to their diagnosis as a oligo ll/lll and I am curious what that is? For those who have gotten a second opinion on pathology, how did you do that and why?
Here's my/our story: My husband was diagnosed with a oligodendroglioma ll after undergoing surgery to remove the tumor. Our intial consult with the local cancer center was underwhelming. They don't have expereince with this cancer and have referred us to Duke, we have a consult at the beginning of Feb. I don't know what percentage the resection would be considered, it's not written in records and no one has given it a number, though I know they can never say 100% removal. His postop MRI was "clear" and showed no tumor or associated swelling like the preop MRI did. The pathologist graded him a ll but commented that there was increased mitosis and Ki67 labeling rate, both of which indicate growth and a higher grade, other higher grade indicators were negative. One oncologist we have met with feels the pathology comments deserve consideration in whether to just observe with regular scans (which would be the standard course of treatment at this point) or more agressively treat with chemo/rt. She said the grading was subjective and those notes made her pause in following a wait and see protocol.
Anyone with a similar expereince? THank you so much.