Glioblastoma dx in September 2012

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Glioblastoma dx in September 2012

by dls1125 on Fri Jan 25, 2013 12:24 AM

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My mom was diagnosed in September with a tumor on the right side of her brain. They removed 85% of it, her recovery was incredible and she had 30 days of radiation and 30 days of temodar. Treatment ended on December 3rd. The beginning of January she fell and we took her in to find out the tumor had began to grow, they have now started her on Avastin. She is really depressed. I am hoping someone can share a story or two with me that I can share with her that will lift her spirits and give her hope. She is 78 yrs old. Before the tumor she was very active in the community and in social circles as well as with her grandchildren. I need to know if the avastin will give her some more time or if there is something else out there.  

RE: Glioblastoma dx in September 2012

by SarahGrey on Fri Jan 25, 2013 01:12 AM

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On Jan 25, 2013 12:24 AM dls1125 wrote:

My mom was diagnosed in September with a tumor on the right side of her brain. They removed 85% of it, her recovery was incredible and she had 30 days of radiation and 30 days of temodar. Treatment ended on December 3rd. The beginning of January she fell and we took her in to find out the tumor had began to grow, they have now started her on Avastin. She is really depressed. I am hoping someone can share a story or two with me that I can share with her that will lift her spirits and give her hope. She is 78 yrs old. Before the tumor she was very active in the community and in social circles as well as with her grandchildren. I need to know if the avastin will give her some more time or if there is something else out there.  

sorry to hear...  my husband was diagnosed with inoperable gbm in may of last year.  radiation and temodar did nothing but make him tired and sick.  they added avastin and boom - tumors shrunk in half.  next mri is in a few weeks...  God willing, the tumors will be smaller still...

let us know how your mom does!

RE: Glioblastoma dx in September 2012

by jon4156 on Fri Jan 25, 2013 02:31 AM

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GBM is a very personal disease in the sense that there is no guarantee that any therapy is going to present a particular person with success or failure.

In general, most people find Avastin helps shrink their tumor for a period of time and provides some element of relief that allows them to function relatively normally.  Only time will tell if it provides benefit to your mother but she should be encouraged enough by the experience of others to remain hopeful and try it.

If she has had an "incredible" recovery and tolerated radiation/temodar that well, then that should also serve to give her hope because most patients her age do not tolerate those therapies well.

Now for your consumption, and not your mothers, unfortunately temodar and Avastin are the top-of-the-line therapies for GBM.  While there are other therapies available they typically do not prove to be as effective.

 

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