One patient with glioblastoma still alive nine years later
by megomego on Mon Jan 28, 2013 04:46 AM
I recently read a thread where a woman had Nanoknife performed to reduce her largest liver met - she then had liver resected and Whipple procedure performed. She is now cancer free.
Has anyone else had this experience or know of anyone who has had this experience? If so I would like to hear it and get as much info as possible.
My dad was diagnosed in April 2012 with PC - stage 4 with liver mets. We have tried Gemzar (d/c'd after rare lung reaction), 5FU w/Oxaliplatin (d/c'd after blood flow issue) and now he is on Abraxane, solo. Any and all suggestions, help, words of encouragement and snsight would be MUCH APPRECIATED. Thanks!
by shelby1 on Mon Jan 28, 2013 01:34 PM
Google places that do Nanoknife and or doctors that do Nanoknife or I.R.E.. What about Folfirinox?
by bestfriendmom on Mon Jan 28, 2013 01:40 PM
The is a book at by Bob Brown and his journey with PC. It might be helpful for you to read it. He had trouble getting anyone to do the whipple procedure on him and evenually had the procedure. he is now cancer free for 7 years. I found his book very inspirational for me.
by shelby1 on Mon Jan 28, 2013 02:02 PM
I don't know where the cancer is on your dad. Ours was at the head of the pancreas, others are elsewhere. My suggestion is to know what kind of pancreatic cancer he has and find a "specialist" in PC. Places like Hopkins-MD Andersen, Mass. General-for info-unless you're already at one. Again, I would ask about Folfirinox.
by megomego on Tue Jan 29, 2013 01:46 AM
I would recommend Ride of My Life by Bob Brown to anyone with PC He is an amazing man who has a kind heart and a lot of fight in him. My sister and I went to his websie, emailed him and had a response in the same day. He even took hours out of his evening to call and visit with us while waiting for yearly test results at CTCA. Please research it and buy the book...you wont regret it!
by megomego on Tue Jan 29, 2013 01:49 AM
He has not tried Folfirinox. He has, however, tried Gemzar, 5FU w/Oxaliplatin and now Abraxane, solo.
by megomego on Tue Jan 29, 2013 01:55 AM
His tumor originates at the head of the pancreas. He also has liver mets.
by shelby1 on Tue Jan 29, 2013 05:13 AM
Folfirinox is harsh but effective. The Abraxane and the others may be a prelude to Folfirinox. We can't do Folfirinox because of blood issues-low platelets. Ask why not Folfirinox as it does have a better record. Google it.
by megomego on Tue Jan 29, 2013 03:12 PM
Thanks, will do.
by bestfriendmom on Tue Jan 29, 2013 05:59 PM
I had the same experience with Bob Brown. After I read his book I send him an email and he emailed me back the same day. since then I have been in contact with him several times. He is truly inspirational and helpful to anyone that contacts him. You can download his book on any of the electronical books or order it on amazon. I have a friend that was diagnoised with PC in October and i sent the book to her from Amazon. Both my mother and I read it on our kindle. It helped both of us to remain extremely positive when we felt like giving up. It give me the strength to keep looking for new doctors until I fund one who was willing to help my mom.
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