One patient with glioblastoma still alive nine years later
by redcajundj on Tue Jan 29, 2013 03:51 PM
My sister was diagnosed in June of 1996 with a glioblastoma tumor and was given 9 months to live and it is now 2013 and she has been given now 6 months to live. Her life has not been easy, but she has survived with no signs of another tumor until recently. Radiation has come back to haunt her. I think she might be one of the longest living survivor from this type of tumor.
by fromuk on Tue Jan 29, 2013 04:17 PM
wow ... it's great to hear that your sister did so well - can i ask other than the radiotherapy that you mention which other treatment did she have? ie surgery/chemo/avastin
is she having problems from the radio - you say it has come back to haunt her ........... i hope the future is kind to you all
carla (sister has gbm4)
by redcajundj on Tue Jan 29, 2013 04:42 PM
back in the beginning she has surgery to remove it and then again to put the radiation seeds in her skull, no other surgeries. she lived as comfortably as possible. she could walk, but was always cold. she eventually had to start wearing diapers back in 2004 then came a walker. seizures have now picked up, she can no longer walk. is now being moved to a hospice house.
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