husband gbm dx

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husband gbm dx

by raiderfan on Tue Jan 29, 2013 10:57 PM

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my husband was dx in july with a gbm iv he had his second mri and once again all is clear his treating dr's were very happy with this saw rad oncologist and he came short of saying my husband is like a miricale he takes 460mg of temodar with no sickness he is just like he was before he got sick went back to work driver for ups and he has been on the novocure trial since oct can anyone please tell me if it is unusual for 2nd mri to be clean and is this a good sign of his prognosis

RE: husband gbm dx

by SarahGrey on Wed Jan 30, 2013 12:18 AM

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hello!  was his tumor removed surgically and if so, was it completely removed?..

RE: husband gbm dx

by RobinMB on Wed Jan 30, 2013 09:46 PM

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My husband also has GBM IV.  He was diagnosed in Feb. '12 and he is also a driver for UPS (tractor trailer).  He had surgery to remove the tumor (total resection) and he has never had a clean MRI.  The tumor just keeps coming back.  He has not been able to return to work.  He is now on Temodar (21 days low dose - 100mg.) and Avastin every two weeks.  So far, his first MRI after this new treatment has not showed tumor progression.  So, yes I think it is a very good sign that your husband's MRI's look so good.  That's wonderful!!!  It sounds like your husband is a real fighter.  He's one of the lucky ones.

Robin from NY

RE: husband gbm dx

by Randy1958 on Wed Jan 30, 2013 10:11 PM

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On Jan 29, 2013 10:57 PM raiderfan wrote:

my husband was dx in july with a gbm iv he had his second mri and once again all is clear his treating dr's were very happy with this saw rad oncologist and he came short of saying my husband is like a miricale he takes 460mg of temodar with no sickness he is just like he was before he got sick went back to work driver for ups and he has been on the novocure trial since oct can anyone please tell me if it is unusual for 2nd mri to be clean and is this a good sign of his prognosis

Hi raiderfan,

I was dxed with GBM nearly a year ago (February 25th), had proton radiation and Temodar (seven months of it), my second MRI came back clean, that is, in docspeak, "there is no evidence of recurrence or residual neoplasm".  I go back to the doc tomorrow for the results of my latest MRI (January 10th), I'm not anticipating any problems; I've been doing two miles a day on my treadmill as well as other odds and ends.  Haven't had Novocure or any fancy diets, just standard treatment for GBM.

I was on 400 mg Temodar for five days each month in September, October and November.  Never really got sick, just nauseous at times.  Congratulate your husband for me, this cancer is a mother******* to beat, and whatever he's doing, have him bottle it for the rest of us!

RE: husband gbm dx

by amydibello on Thu Jan 31, 2013 01:11 AM

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On Jan 29, 2013 10:57 PM raiderfan wrote:

my husband was dx in july with a gbm iv he had his second mri and once again all is clear his treating dr's were very happy with this saw rad oncologist and he came short of saying my husband is like a miricale he takes 460mg of temodar with no sickness he is just like he was before he got sick went back to work driver for ups and he has been on the novocure trial since oct can anyone please tell me if it is unusual for 2nd mri to be clean and is this a good sign of his prognosis

Wonderful. So happy to hear it for you guys. Inspiring. Thanks for sharing and I'd say oh heck yes it's a great sign of his prognosis and just a great sign for quality of life right now. We try not to live from MRI to MRI...that's torture. We try to live a lifetime everyday and TREASURE it...it seems to be working so far.

Thinking of you all and holding all of us in prayer.

Amy (and Jeff)

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