The end is near...

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The end is near...

by Liz109 on Tue Feb 05, 2013 04:31 AM

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I read here often, but cannot find it in me to post often.
My mom has been fighting the GBM fight for 27 months now.  I live 1,000 miles away and have been her cheerleader from the sidelines.  I make it to see her as often as I can (but it never seems like enough!!!)

Last month she took a turn for the worse and ended up in the ER after being non responsive.  I think it was because her doc reduced her decadron in half (from 16mg to 8mg), but that doesn't really matter anymore.  That led her to ICU on a ventilator.  Was able to "come to" 2 days later and breath on her own.  Spent 7 days in the hospital.  During that week, our biggest fears came to light.  The tumor they removed from her right frontal lobe had come back with vengence and brought 2 buddies with it the right side of her brain.  All options off the table (no radiation, no surgery, not strong enough to start her avastin as they had planned).  Basically, the doc said these tumor just invaded her brain full force and fast.
We brought her home under hospice care.  I flew down the day she was admitted to the hospital and was able to stay for 2 weeks.  Spending nights in the hospital, talking to doctors, nurses, interns, etc.  Setting up hospice, supplies, etc.
I got to spend moms first week back at home with her and help care for her spend time with her.

She has progressively gotten worse since then.  This past weekend has been the worse.  She has been unresponsive but holding strong for the last 3 days.

I just pray for peace for her.

RE: The end is near...

by NINA78 on Tue Feb 05, 2013 07:19 AM

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Pray for peace for her and you.  I am very sorry for what is happining.  

RE: The end is near...

by future2020 on Tue Feb 05, 2013 12:45 PM

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I am sorry for what is happening to you and your mother, and it saddens me to know what is coming next. Hold her hand, talk to her, cherish the moments you have left.

I also pray for peace for her and you. Keep strong and remember the good times.

RE: The end is near...

by modesta on Tue Feb 05, 2013 01:24 PM

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I pray for peace and strength for all!

 

RE: The end is near...

by Bee_Rich on Tue Feb 05, 2013 01:42 PM

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my thoughts are with your mom, you an family

RE: The end is near...

by loveiseternal on Tue Feb 05, 2013 05:00 PM

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Liz,

My heart breaks for you.  My Randy was in a coma the last 5 days.  Hang in there.  Keep talking to her as I am sure that they can still hear.

Strength and peace to you as you get your mom to the finish line,  Sally

RE: The end is near...

by StrangeTimes on Tue Feb 05, 2013 10:00 PM

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I am a college student and I just dealt with the death of my father from GBM IV on January 22nd. He only lived for 5 months after his diagnosis despite surgery/chemo/radiation/Avastin. I took care of him the last two months, and I know how hard it is, but you'll be amazed how strong you can be in such a tough situation. Many people, including myself, felt a great deal of peace when it was finally over. I'm normally not a religious person, but I truly feel my dad is around me at all times now - urging me to go on as "great things are about to happen."

Several days before death, the GBM patient often falls into a continuous state of sleep. When the "death rattle" starts, that normally means they're really close to the end. If you're using hospice, request an atropine patch if they don't provide it, as that makes all the difference near the end. It will stop any secretions coming out of her mouth and reduce or eliminate the raspy breathing.

The patient's hands and feet will start to turn blue, though in my fathers case that went away following the atropine patch. Then the breathing will be broken up by brief pauses - for only a second or two - and then eventually they'll pause but not return back to normal respiration. Then hospice comes and verifies they have no vitals, and within an hour or two she'll be picked up by the crematorium or morgue.

I am only telling you because I so desperately wanted to know what to expect before my father passed. I was terrified of those last moments for months, and yet when it happened, I was somehow okay.

RE: The end is near...

by Liz109 on Wed Feb 06, 2013 05:22 AM

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Thank you everyone.
Unfortunately, I am not with her now.  I am back at home. 
Her temperature has been fluctuating a lot today.  Still non responsive.  Hospice nurse said her body is continuing to shut down.  She has been "congested" and rattling for a couple days now.  Hospice left a "comfort kit" in the refrigerator.  That was opened and started its use a couple days ago too.
My brother and my uncle were able to do A LOT as far as arrangements are concerned today.  I won't get into everything because it's been a long day (and I'm sad and mad about a lot of things right now--this should have been taken care of a long time ago........another story for another time).  But somehow, with all the planning and work we have done today, I feel I can now start to grieve.
We got everything in motion for her cremation, made memorial "programs", almost have her obituary complete, agreed on an urn(s), agreed on flowers, etc., started a list of things we need for her memorial service(s).

Thank you all again so much. 

RE: The end is near...

by NINA78 on Wed Feb 06, 2013 05:58 AM

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On Feb 06, 2013 5:22 AM Liz109 wrote:

Thank you everyone.
Unfortunately, I am not with her now.  I am back at home. 
Her temperature has been fluctuating a lot today.  Still non responsive.  Hospice nurse said her body is continuing to shut down.  She has been "congested" and rattling for a couple days now.  Hospice left a "comfort kit" in the refrigerator.  That was opened and started its use a couple days ago too.
My brother and my uncle were able to do A LOT as far as arrangements are concerned today.  I won't get into everything because it's been a long day (and I'm sad and mad about a lot of things right now--this should have been taken care of a long time ago........another story for another time).  But somehow, with all the planning and work we have done today, I feel I can now start to grieve.
We got everything in motion for her cremation, made memorial "programs", almost have her obituary complete, agreed on an urn(s), agreed on flowers, etc., started a list of things we need for her memorial service(s).

Thank you all again so much. 

My sister was in where you are at.  She traveled 10 times few 1000 miles in 10 months of my mom dex and the end and stayed 2 weeks each time.  It was emotionally and physcially difficult on her since she is also cancer patient and working.  My sister went back her home one week before mom leaving us while she knew it was the last time.  Each time my mom used to say to her "see you next time and come back soon" but in her last visit mom told my sister to take care of herself and God be with her.  It was difficult time but my sister says she is glad she did it all even with her physicall condition.  I am very sorry again for what you are going through.  

RE: The end is near...

by MikeBronx526 on Wed Feb 06, 2013 06:04 AM

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I truley break down reading this. I went through this with my beautiful mother. I am 20 years old and have been with my mom her whole fight until god called on January 7th 2013. She ended up in hospice like yours. Please talk to her. She can hear you ! I told my mom I loved her so much and she was my best friend always and forever. I'm crying typing this. I am so sorry liz
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