Newly diagnosed

Hi everyone, I was just diagnosed with stage IV GBM and had surgery on January 16th. I start my chemo/radiation treatments today. Things have happened so fast and trying to absorb all the new information etc has been difficult. Just reaching out to others who have been through this and try to make sense of it. Lee

Hello Lee,

Welcome.

On this board you will find many others like yourself. There are no dumb questions here. You will find many knowledgeable people who will do their utmost to help.

This can be a very confusing and very manic time for you.  Feel free to reach out to us for help.

Hux...

 

Hux....

 

GL with the chemo and radiation.  All of this indeed creeps up on all of us fast.  My husband has the same diagnosis.  He had surgery in July 2012 and did his 5 weeks of radiation and chemo in November.  This community is a great place for questions, venting, encouragement and everything in between.

On Feb 06, 2013 5:18 PM Sptchr99 wrote:

Hi everyone, I was just diagnosed with stage IV GBM and had surgery on January 16th. I start my chemo/radiation treatments today. Things have happened so fast and trying to absorb all the new information etc has been difficult. Just reaching out to others who have been through this and try to make sense of it. Lee

Lee,

I can relate to you as I am wet behind the ears through this whole process.  I too was just diagnosed with stage IV GBM at the begining of January and had surgery on January 15th to remove roughly 98% of the "beast" tumor. I too will be starting my Temodar chemo/radiation treatments on February 07, 2013. I have seen alot of others that have out lasted the standard doctors timeframe and we are not just statistics. I know this is a hard thing to comprehend and not knowing is rougher at times. Just know that JESUS will take care of us and HE will not put more on us than we can bare.  Take care and keep your head up!

Where did you have your surgery? Are you satisfied with your drs or are you going to get a second opinion?

On Feb 06, 2013 10:55 PM Sptchr99 wrote:

Where did you have your surgery? Are you satisfied with your drs or are you going to get a second opinion?

Lee,

I had my surgery @ MUSC in Charleston, SC.  I am satisfied with the Dr. getting roughly 98% of the tumor out of the left side of my head right above my left ear. I will follow the plan laid out for me with the chemo and radiation, but most of all I will not be getting a second opinion as I have turned this whole situation over to JESUS!  May JESUS bless you and your family during this time and know as I do that JESUS can heal us.  

Patrick

Dear Lee,

I am sorry. My fiance was dx Nov. 30 after his tumor was mostly resected. He just completed his radiation and first cycle of chemo. He is going strong and never really got too sick. His tumor was massive and on the right temporal parietal lobe. He presented in coma with crushed brain stem and total brain shift with non responsive and unequal eyes. He was not supposed to survive the surgery, but he is back and home and well as he can be with some memory deficit but a GREAT GREAT attitude. Stay positive. We are with you in spirit. YOU can do this...Reach out often and know you are not alone.

Amy

Hi Amy, Thank you for reaching out. I am glad to hear that your fiance is doing well. He is blessed ro have you in his life. You both are in my thoughts and prayers. I came across a website called choosehope while looking for bracelts for my grandchildren to wear and found a saying "no one fights alone" and I believe that...whether family or strangers.....so never give up! Lee

Thanks Lee. You're so right. Never alone. We ordered hundreds of the gray wristbands from a fundraiser site, super inexpensive. We hand them out all the time to friends, family and supporters and survivors and their families. Somehow others wearing the bands helps us feel strong and supported. We add you to our prayers. peace and light,

Amy