One patient with glioblastoma still alive nine years later
by slacy40 on Wed Feb 06, 2013 10:49 PM
So we just went to the Dr. to get the results of my husband's first MRI since radiation. The Dr. said my husband's tumor is larger than before treamtment began (It was 6cm before treatment), but he feels the enlargement may be due to "treatment effect". The way he explained it was basically the cells were dying, and causing "swelling". He also said Robert still have a lot of edema (which we weren't surprised by). So, he will continue on the decadron. The Dr. said he will do another MRI in two months, to ensure the enlargement is due to healing and not continued growth.
I'm thankful there is no new tumor growth in any other parts of his brain, but I still feel as if we didn't really get any real answers.
by huxley2006 on Thu Feb 07, 2013 04:54 PM
It normally takes several MRI's to determine if there is true growth.
There is no definitive way for doctors to distinguish between treatment effect and growth initially as things get pretty messy once treatment begins.
It’s a case of letting the dust settle before they can get a truly accurate reading.
by slacy40 on Fri Feb 08, 2013 01:23 AM
Thanks Hux. I guess I was just naive thinking we would know something definete from the MRI. I guess, though, we really did learn SOMETHING definete, and that it there are no NEW tumors!
by Glitzy1294 on Fri Feb 08, 2013 02:30 AM
We got the same response after our first MRI after treatment. The next MRI was much clearer this time, but you never get all the information you want sadly.
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