One patient with glioblastoma still alive nine years later
by Kelly5 on Thu Feb 07, 2013 11:16 PM
I have AML, systemic mastocytosis, and Hep C. I was diagnoses with the AML march of last year, I'm hoping for a transplant soon, otherwise I am told I do not have long to live. My AML is much more agressive then they first thought and I never stay in remission for long at all after chemo, it is always for less then a month. So my only choice is a bone marrow transplant. No on in my family was a match so they are looking for a match in the data bases they use. It is risky for me to have the transplant because of the Hep C, yet there again it is my only choice if I want to live for any length of time. Please if anyone has any advice, or something to say that might help please do reply.
by jaymunsdad on Sun Mar 03, 2013 01:10 AM
Bone marrow transplant is your best long-term option. If all traditional methods fail and the oncologists give up ...then try a combination of alternating concentrated herbal medicines like we did for our son Jaymun. It got him into remission and bought another year. His leukemia still proved refractory and we lost him, but it did work after a transplant and traditional chemo ran it's course and the doctors gave up and sent us home on palliative care. www.jaymun.com
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