One patient with glioblastoma still alive nine years later
by miamib on Mon Feb 11, 2013 07:23 PM
Hello, I had a right crainiotomy in March of which 20-50% of the tumor was removed the surgeon explained he needed to get a biopsy to give me an official diagnosis. The confusing issue is that before surgery I only had a flickering light in the upper corner of my right eye (this led me to find tumor), Now after surgery I don't have the flockering light but had a seizure in May, almost daily episodes (call them focal seizures if you'd like) and a problem with depth perception and concentration.
Now I'm no expert but if I had part of my tumor removed prior to surgery then why are my symptoms worse now as opposed to before surgery when I had a larger tumor? It doesn't make sense! So much so I feel like the biggest moron for having the surgery in the first place
by Bee_Rich on Mon Feb 11, 2013 08:31 PM
all surgeries including biopsies carry risks, my tumor is inoperable, but of course std protocol is to biopsy. I bled after the biopsy, suffered stroke symptoms and started seizing like crazy. once the seizures were under control, i had to spend weeks at inpatient rehab hospital to get my flaccid arm and affected leg to work.
suffered more major seizures, more hospitalization before my chemo/rad. arm tremors started durin rad. now in outpatient pt rehab for left arm 3x/week.
shiat happens. sometimes the risks catch up with ya. do i get down about it?heck yeah. bawled last night. but gotta get up, rub some dirt in it and get back in the game!
by plener on Thu Feb 14, 2013 12:59 PM
i would give some thaught to tryig novocure---
by siblingof on Thu Feb 14, 2013 03:44 PM
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