Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by jdykllr on Wed Feb 13, 2013 07:18 AM
I talked my husband's Doctor head Nurse at University of Washington Medical today. She called & talked to me right after she got done talking to Dr. Mrugala. Dr. Mrugala said they have done all they could for Steve & there is NOTHING more they could do for him at this time. So we were advised to just put Steve in Hospice care and make him as comfortable & pain free right time & let this Tumor eventually takes his life. So we did a family conference phone call today & We came to a very difficult dicision as hard as it as to let go but at the same time, it is very very difficult to watch him suffer. We don't know what the Lord's plan is but many many people have prayed & looks like for some reason the Lord wants him to go home to heaven.I don't know what tomorrow brings but I know & believe that the Lord will take care of me & our 2 Boys. My heart is just soooo broken for our 2 young boys the fact that they are NOT going to have their Dad around to watch them graduate Highschool & things:-(
by mltull on Wed Feb 13, 2013 07:38 AM
You have been such a wonderful and faithful caretaker and wife. The Lord will absolutely get you and your boys through this,and carry you forward. I will be praying for you.
by Lgarmany on Wed Feb 13, 2013 08:46 AM
by jpearson472 on Wed Feb 13, 2013 01:57 PM
judy I am so sorry to read this. You and your family are in my thoughts and prayers
by Bee_Rich on Wed Feb 13, 2013 02:43 PM
my thoughts are with you, your boys and your hisband.
know that you and your boys will get through this painful period and will remember the good warm times.
That is what sustains me as I go through this joutney.
by jackie342 on Wed Feb 13, 2013 04:43 PM
You are at the point, with this horrible monster, that all of us here dread. May the Lord lift the pain from your family and give you peace. My husbands tumors (now 3) are progressing on temador. He was Dx in April 2012. I do know the heartache that you are feeling.
Peace to you and yours,
by Colbert on Wed Feb 13, 2013 05:19 PM
We, also, have just signed up with hospice. Such an emotional roller coaster. When my husband was diagnosed last March, we felt he had five years left. Never did I think it would be this short. My heart is broken, and every day I wonder how we're going to get through another day.
by loveiseternal on Wed Feb 13, 2013 05:56 PM
So sorry. I know that I am preaching to the choir but -
I HATE GBM.
My husband Randy was in hospice for 7 months before he passed and they really were terrific. Also, Randy made it 7 months completely off treatment. So you really still don't know how it is all going to play out from here. But it is a big decision, one that is hard to make.
To give you some hope with your kids--my boys were 11 and 9 years old when Randy got sick and they were 14 and 11 when he passed away. They have been doing much better than I ever expected at almost 8 months after his death. They are telling me that they think it was much, much harder when he was sick than now.
God bless you all as you all as you go through this next phase, Sally
by Randy1958 on Wed Feb 13, 2013 06:02 PM
I'll say this just once.
I want to hit something.
Please let Lori and I know if there is anything we can do from down here in Socal.
by Colbert on Wed Feb 13, 2013 06:04 PM
I have wondered about that all the time. Surely it isn't going to be any more awful than this is? That gives me some light at the end of the tunnel.
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