One patient with glioblastoma still alive nine years later
by Sheffielder on Wed Feb 13, 2013 08:51 PM
I've only just discovered this site and am writing as my nephew (49 years) is now in his last week of Radio. Apart from the initial seizures last November, he appears to have no symptoms.
Any comments on what seems to be a bizarre situation most welcome.
Chris. (in France, nephew in UK)
by bpp30m on Thu Feb 14, 2013 07:03 AM
Consider yourselves lucky. i hope and pray the no symptoms continue. The best of luck on the journey that nobody wants to be on
by Bruce_Edward on Thu Feb 14, 2013 06:25 PM
My daughter had one seizure and no other symptoms. She was 20 at the time, had surgery, radiation, and temodar. She sailed through without any difficulties. She is now 25...and enjoying life...I say don't pay attention to statistics...pray and have faith! Blessings to your nephew.
Signed thankful, Bruce
by Sheffielder on Thu Feb 14, 2013 07:40 PM
That sounds exceedingly positive, thank you.
Tomorrow is his last Radio day, and then wait and see before a further scan to see what is what. He remains very positive, planning family holiday at the moment despite insurance company wanting 9 grand for worldwide insurance!!
Please feel free to check out his page and have a laugh at the photos.
by slacy40 on Thu Feb 14, 2013 08:20 PM
Absolutely do consider yourself lucky. My husband started having physical/mental changes before we knew he had brain cancer. Unlike many, he didn't have his first seizure until his third week of radiation. At the height of radiation he was having three seizures a day, confined to a wheelchair, and cognitively delayed. He finished his radiation treatments December 26th, and is just now beginning to walk better.
I pray for continued strength and no disabilities for your nephew!
by Sheffielder on Thu Feb 14, 2013 08:22 PM
Thank you, and all the best to you and your family.
by plener on Thu Feb 14, 2013 08:32 PM
i pray for all of you
by Sheffielder on Fri May 17, 2013 08:49 PM
Time flies by. Nephew has now had his 6 weeks radio, followed by 3 months chemo and today been for MRI scan. No news from family at the moment so don't know whether it's good or bad. Still no serious symptoms apart from tiredness and often memory loss but no pain as such.
Perhaps all our prayers have been answered, I'll let you know.
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