One patient with glioblastoma still alive nine years later
by Colbert on Thu Feb 14, 2013 05:15 PM
Does anyone have any suggestions to lower the biliruben number? I realize my husband's liver is failing, but if I could just get that number lower, he may be eligible for some clinical trials.
by Bao19281 on Fri Feb 15, 2013 12:54 AM
He needs to change his diet, carrot and apple juice, Beets with apple is good too. got to be fresh juice, can not buy from market. many doctors said he can eat anything. that is wrong, at this point the easy the meal to digest the better his body will be. how high is his billruben number?
by Colbert on Fri Feb 15, 2013 01:35 AM
18 :( Blew up after he went on stivarga.
by sondrella on Fri Feb 15, 2013 01:54 AM
My mother had to have a drain put in to get her level down. It is called a biliary drain that is for if the bile duct is blocked.
by Colbert on Fri Feb 15, 2013 01:58 AM
Why hasn't anybody suggested that????? If his biliruben wasn't so high, he would qualify for some other procedures!
by sondrella on Fri Feb 15, 2013 02:09 AM
I am not sure why that has not been suggested but it was the only option for my mama. You could ask the dr. It does help although it is permanent but it helps.
by Colbert on Fri Feb 15, 2013 02:12 AM
It is permanent? It stays in?
by sondrella on Fri Feb 15, 2013 02:23 AM
Yes the drain my mama had was permanent and it had a bag so it would drain. It had to be drained each day sometimes more than once a day. But it helps so I guess it was a good thing.
by Colbert on Fri Feb 15, 2013 02:58 AM
That's certainly do-able, in light of the options. My husband is so uncomfortable.
by sondrella on Fri Feb 15, 2013 03:57 AM
I am so sorry your husband is in pain. I will pray for the Lord to comfort you and him! Keep me posted. Sondra
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