Glioblastoma - help with supplements

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Hi, My husband has been diagnosed with gbm. He is currently in his 5th week of radiation/chemo. I have read a lot about supplements online and in books. But, I am not sure what he should take and what he can take during radiation and chemo. If anyone can help. I would be grateful. Thanks

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johngiustino

Ben Williams will tell you everything:

http://www.virtualtrials.com/williams.cfm

You can read his online update on treating brain tumors which contains information on supplements. You may want to consider high doses of melatonin while on radiation (read the online update). Also buy his book:

Surviving Terminal Cancer: Clinical Trials, Drug Cocktails, and Other Treatments Your Oncologist Won't Tell You About.

Good luck, keep posting here and others will give you their experiences.

-JG

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siblingof
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He shouldn't take anything that hasn't been shown to and approved by his neuro-onc and radiation-onc. He should add only one new supplement per week, while watching carefully for side effects. Here's a link to a discussion on the topic: http://www.cancerforums.net/threads/28777-Supplements-for-gb

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jon4156

Agreed...if the oncologists don't approve it, don't use it.

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rfisherman

Is he open to using a restricted calorie ketogenic diet? My Dad (age 60) was diagnosed nearly 2 years ago. Since starting the diet 18 months ago we have had MRIs showing no growth ever since. Our only problems have been brain damage caused by radiation necrosis (we regret doing that), but of course everyone responds differently to radiation. The diet has had no side effects so far other than it makes it hard to go out to eat (but not impossible).

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Careg