One patient with glioblastoma still alive nine years later
by Victorallp on Sun Feb 17, 2013 07:15 PM
by bambi99d on Wed Feb 20, 2013 09:24 PM
Sounds like you have ascites. My Mom had this for almost a year after her surgery. After an endoscopy the doctor determined it was caused by portal vein occlusion. I know the ascites made her extremely uncomfortable. She was tapped every 10 days at some points and then would go months without being tapped.
Has the fluid been tested for cancer cells? The doctor can tell you if the fluid is malignant which can help point towards the cause.
by Victorallp on Thu Feb 21, 2013 10:44 PM
Thank you for your respond bambi99d My doctor have tested the fluid and is not malignant no cancer cells found there is some fatty on the water, she also check my liver and is normal no cancer cells , Can you tell me how your mom was cured from this experienced and where the the liquid can from? My doctor wants to continue with kemo therapy and I am not sure if I want to continue with this action.
by bambi99d on Mon Feb 25, 2013 07:17 PM
That’s good news that they weren’t any cancer cells found. Unfortunately my Mom’s ascites was never resolved. She passed away last year. She had the fluid for almost a year. One of the doctors did mention putting in a shunt but she wasn’t strong enough for the surgery. The other option is to put in a drain where you can drain the fluid at home yourself. I also think a large part of her problem was lack of nutrition. She was malnourished which also contributes to the fluid buildup.
I’ve heard of cases where it does resolve itself, so there is a chance that could happen.
by Clarisax82 on Tue Feb 26, 2013 07:30 PM
by Victorallp on Sat Mar 02, 2013 08:26 PM
by cb531 on Sat Mar 23, 2013 10:56 PM
by Victorallp on Sun Mar 24, 2013 02:22 PM
by cb531 on Mon Mar 25, 2013 05:28 PM
On Mar 24, 2013 2:22 PM Victorallp wrote: Sorry to hear about your mom, the liquid is not painfull, what is painfull is the more liquid builds up in your belly the other organs get push around and this can be very painful, my doctors are telling me this is due to the weight lost that I have during the chemo treat ment and also was to the malnourishes or not having enough proteins. Please let me know how your mom does.
On Mar 24, 2013 2:22 PM Victorallp wrote:
It is now day 3 with this belly extented. Called the Ongoligist and she feels its just from gas with out seeing her. Or a side effect of the chemo. She goes to the infectious control Dr this week and chemo again on Friday. Lets see what they think then. I just can't take it she has had everyside effect possible from this chemo and no relief from pain. It is her choice to continue with the chemo but I really don't think there is any quality of life left. So sorry to be so negative because this is usually not how I am but everyday I witness the pain, vomiting, diarehha and not eating and I really don't know what else to do:( so sad.
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