One patient with glioblastoma still alive nine years later
by cpnmorgan on Sun Feb 24, 2013 09:07 PM
My husband has recently been diagnosed with this(after another trip to the ER yesterday morning) and they believe a side effect from taking CeeNU(CCNU). Anyone have experience with this and did it eventually go away?
by karynk on Mon Feb 25, 2013 12:02 AM
I don't know if Tom was ever diagnosed with Ataxia. There was so much overlap with his neuro symptoms, it could have been there or could have been one of the other ones. Hopefully someone can provide some feedback for you in regards to CCNU. Tom was never on that drug. What is affected by the ataxia?
by bpp30m on Mon Feb 25, 2013 12:22 AM
wow, sorry i cant help you much either but this is the first time i actually looked up the meaning of this word and seems just about every thing they describe is going on with my son even tho i havent heard any of his doctors use the word.
Hope yall find the answers youre lookin for
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