One patient with glioblastoma still alive nine years later
by Stacyg on Sat Sep 30, 2006 12:00 AM
by Bernadettenoelle on Thu Oct 05, 2006 12:00 AM
by Jrotten on Tue Nov 14, 2006 12:00 AM
by Stacyg on Wed Nov 15, 2006 12:00 AM
by Holi44 on Fri Feb 02, 2007 12:00 AM
by Eric_j_1 on Thu Mar 08, 2007 12:00 AM
On 2/2/2007 Holi44 wrote:I have just finished my second sialanoscopy at UC San Francisco Mt Zion Hospital. It is a new procedure being done by Dr. David Eiselle. He is working with patients who are having salivary swelling post thyroidectomy. He uses a laser with saline solution to clean our the gland. They blow it up really big and clean deep into the gland. One lady is totally free of the swelling and pain after two treatments. Mine has been going on for 3 years now, and it looks like the parotid on the left is totally damaged and beyond repair. We will see, it has only been a week. What I wanted to share is that this dr. tells me that he is having great success with patients who have just had the first acute attack of this after a recent TT surgery. It is not unusual to have a flare up 3 months to several years post surgery. I wanted to let anyone know that if they are just suffering with this a year or so after the original surgery and haven't had a lot of infections, this procedure might be the answer for them. It is only being done in San Francisco and the Univ. of Pittsburgh. If you want some more info, email me and we will chat.I would like more information - experiencing salivary gland issues after TT surgery. How do i contact Dr. Eiselle?
by Seasea on Fri Apr 27, 2007 12:00 AM
I am so glad I am not the only one that has experienced this problem. I had my thyroid removed Oct 06, did RAI Jan 07 and as of beginning of April 07 I have been having problems with my salivary glands, first right side and today my left. My doctors couldn't say that is was a side effect to the RAI and now after reading your comments, I am convinced. Now, maybe, we can find a way to treat it. They have been telling me I have a stone for the last few weeks. What I am wondering now is how invasive is this sailoendoscopy treatment? I am so tired of being poked and proded. I am exhausted of doctor after doctor. I don't want to have to keep worrying about what is going to go wrong next.
I found this link that was also informative and I printed it to take to my doctor http://www.thyca.org/salivary.htm
by Nvvpbruno on Wed May 30, 2007 12:00 AM
Hi-Any info you could share would be helpful. My Mom had the same problem with her salivary glands and I'm afraid it will be something she'll have to live with. I had my thyroid removed in 1991 and had no problems after RAI so I was shocked when this came up. Any info you can pass on will be helpful.
by marlyn on Wed Apr 09, 2008 12:00 AM
by Stacyg on Mon Apr 27, 2009 12:00 AM
Hello, I have had salivary gland damage to 4 out of 6 of my salivary glands after my RAI treatment in 2005. I had 4 sialoendoscopy's and they helped a little for 1.5 years. Now I am having more swelling and pain in my submandibular glands. I was also told my parotid glands have dried up and died. Now I was told they can inject Botox into the glands to reduce the pain and inflammation but very dry mouth is a side effect and possible weakening of the neck muscles which can make swallowing difficult.
Has anyone ever heard of this type of Botox treatment and if so, is it successful and are there any other side effects.
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