post esophagogastrectomy agony after eating, solved

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post esophagogastrectomy agony after eating, solved

by selinabecker on Fri Mar 01, 2013 11:52 PM

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My father had an esophagogastrectomy in june 2012 due to stage 3 esopageal cancer. He was able to eat without much pain until about 3 months ago. He would eat, and then about 10 -15 minutes later, he would have what felt like bungee cords in his abdomen, and a pulsating feeling, then agonizing gnawing pain. No doctors had any suggestions except for mylanta and gas-x. Nothing was helping. He is a tough guy and he was doubled over, being punished with pain every time he ate. Last week we met with the hospitals dietician who suggested to my dad's radiologist that he prescribe Creon , a pancreatic enzyme. My dad popped 2 of them and within a half hour had the first pain free meal in months. We are so grateful the dietician came up with the simple, brilliant solution. Apparently the esophagogastrectomy scar tissue had left his pancreas unable to pump the necessary gastric juices he needed for digestion. My father wanted me to write about his experience with the hope it'll save someone the unnecessary pain.

RE: post esophagogastrectomy agony after eating, solved

by bethmw on Sun Mar 03, 2013 01:01 AM

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Thanks for the tip.  I hope I can remember it if my husband develops this problem later on.  He hasn't had any trouble eating as yet, but it has only been 4 1/2 months.

RE: post esophagogastrectomy agony after eating, solved

by RLBII on Sun Mar 03, 2013 02:56 AM

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I tell my wife every meal is an adventure, even after 2 1/2 yrs. the best part of all of the suffering is we are still here. It is a new thing that we can share our experience, strength and hope with others.

RE: post esophagogastrectomy agony after eating, solved

by outthere on Sun Mar 03, 2013 03:42 AM

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Husband now 6 months post op Ivor Lewis.. I have posted several times before.The folks on this site have been such a help. Got me through worrying times. Now ganing weight and eating just about everything and fairly good portions. I remember when it took him 2 hrs to get down a cup of cream soup. Had to have two throat stretches helped allot. Never thought we woulld get to this point. He is active however still gets tired easily.Sleepi ng without a wedge. Last Pet scan was clean. It is a long road and scarry one at that but to all out there stay strong in your heart you can beat it.

Does anyone have an idea of what causes ESo cancer?

Our primary care doc says he is seeing an increase in the past two years.

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