One patient with glioblastoma still alive nine years later
by Islandlady490 on Wed Mar 20, 2013 02:31 AM
by pipperpain on Tue Mar 26, 2013 11:15 PM
i experienced mild itching since taking this drug. but i had a medicine for itching fro about 6 yrs ago and this wrked for me. I only need it 1 pr 2 times a month and the onc has no trouble filling it as needed.
by Islandlady490 on Wed Mar 27, 2013 03:20 AM
by Oregon2013 on Mon Apr 01, 2013 09:33 PM
Itching was no fun; I only got rash, itching on face and chin. It would stop, go away if stopped Arimidex. Felt run down, joint pain. I can walk it out, after a few steps it goes away. Had MRI on leg joints, it showed nothing. Most frustrating is weight gain. I tried talking to oncologist, did not get far on issues of Arimidex. I stopped after a year, watching my diet closely, avoiding foods higher in the estrogen. I eat lots more whole gain, walnuts, greens and fruits. I avoid grapefruit, most meats, workout every evening 1.5 to 2 hrs, also walking at my lunch 3 to 4 days a wk. This has to be better than the side effect of that medication
by jcook on Mon Apr 15, 2013 04:32 PM
YES! I itch every day and uncontrollably miserable from it! No rash but sometimes hives. I think it is the arimidex too! My
oncologist doesn't think so but..............I also am having
trouble with a hip!
by jcook on Mon Apr 15, 2013 04:33 PM
On Mar 20, 2013 2:31 AM Islandlady490 wrote: I took Arimidex for 8 months and developed some irritating hip pain and sciatica that hasn't gone away. But the worst side effect that I can only attribute to Arimidex is all over itching with no rash etc. I quit Arimidex with my doctors permission and none of the pain or itching have gone away yet. I have been to a dermatologist, allergist, oncologist, gynecologist, rheumatologist and my primary care doctor. None could find an answer or help for the itching other than taking up to 8 antihistamines a day!! So I decided I'd see a neurologist. She put me on Neurontin and it kicked the itching immediately. So I did some research and found that Progesterone is lowered as well as estrogens, by Arimidex. When progesterone is too low, GABA is lowered too. GABA is a neurotransmitter. It is a calming neurotransmitter. In lowered levels it can trigger systemic itching. Now for the interesting part. Neurontin's generic name is Gabapentin. It increases GABA in the transmitter world of the body. It also helps with nerve pain. My sciatica is a little improved and the itching is gone as long as I take the Neurontin.. I will not take anymore of the cancer drugs. My oncologist said I probably would do worse on tamoxifen so I passed on it and another one. I am working on my diet and exercise to hopefully deter the cancer from returning. Has anyone else experienced this horrific itching? I pray it can be reversed eventually so I can stop the Neurontin too. I hate medicines. I have Lupus and have had it for 20 some odd years. I had about 10 years of horrible illness and meds with that and am happy to say it is under control now for the past 7 years. So now you can see why I hate meds! Well, I have rambled enough. Let me know if anyone has experienced itching. Thanks!
On Mar 20, 2013 2:31 AM Islandlady490 wrote:
by Islandlady490 on Mon Apr 15, 2013 10:45 PM
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
If you were considering traveling for cancer treatment, which headline would you find more interesting?
Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
Neither headline is interesting
We care about your feedback. Let us know how we can improve your CancerCompass experience.