One patient with glioblastoma still alive nine years later
by Timmy_Tucker on Fri Apr 19, 2013 01:04 AM
Hi, have been on Sutent, Torisel, Dovitinib, Sutent again and now Pazopanib (Votrient) and 2 years ago started getting spots on my liver. This was thought to be metastities however a recent liver biopsy has refuted this. They don't know what they are but I have hundreds of these cystes on my liver and all my liver functions (except Bilirubin) have continued to elevate.
PS: Sutent can be rechallenged after failure. It was successful 12 months after failure.
PSS: Went from Sutent (which was holding the cancer steady) to Votrient and had a 50% shrinkage in my metastities.
by Boleynfitz on Sun Apr 27, 2014 08:27 PM
Did you figure out what these were? I have 5-7 spots on my liver. They look like mets on CT and MRI scans, but biopsies come back negative. I'm not on any meds, but had a radical nephrectomy for RCC 6 months ago.
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