Katrina
Your exactly where my son (20 on 15/10) was in January 2005...he had been in remission for 11 months when his ES came back in the same place (well slighly below where the radio had been done) he took the 2nd lot of chem (different regime from the first time) he didn't have the same sickness or side effects in fact he attend college 3 days a week whilst having it ....2 days intro. & 2 oral to take at home, he than had further surgery to remove the 2 tumours & 1 month later another appeared in a different place. . had it removed and then had High Doze therapy with a stem cell transplant (his own harvested at the very beginning of his illness march 03) he then got 9 months in remission & its back again . . but again he is fighting it, he is fed up with it all but he will never give up fighting, ask your oncologist about the HDT & a transplant ....its not commonly done for ES, only 2 in Scotland for ES in 15 years & Ryan was the 2nd, OK his came back still but the girl before him has been in remission now for 3years (hers was on her tail bone) everyone is different you might be 1 of the lucky ones ....don't give up the fight ....the alternative is to die & your much to young for that....Ryan's on the 1st week of a 'trial drug' the medical profession have great hopes for it ....please please take the treatment & keep fighting
take care
Karen