Recurrent Ewings Sarcoma

hi im katrina. last year i had ewings sarcoma multi zoned. two tumors in my pevlis and one on my spine. i recived treatment chemo and radiothephy which worked great and my tumors disapeared. today i found out one of the tumors have returned and that i need chemo again. i dont think i could go through it again tho. does anyone know what my chances of living would be if i didnt have treatment? im only 21 and really dont want the treatment again. am i making the wrong choice? if the first lot of treatment removed it 4 a while then the cancer came back whats not to say that the same wont happen? i just cant live my life in a hospital and under so much stress what if???? am i doing the wrong thing????

get the treatment. Recurrent Ewings is no good. Fight this thing. You are too young and have too much to live for to give up.

Katrina Your exactly where my son (20 on 15/10) was in January 2005...he had been in remission for 11 months when his ES came back in the same place (well slighly below where the radio had been done) he took the 2nd lot of chem (different regime from the first time) he didn't have the same sickness or side effects in fact he attend college 3 days a week whilst having it ....2 days intro. & 2 oral to take at home, he than had further surgery to remove the 2 tumours & 1 month later another appeared in a different place. . had it removed and then had High Doze therapy with a stem cell transplant (his own harvested at the very beginning of his illness march 03) he then got 9 months in remission & its back again . . but again he is fighting it, he is fed up with it all but he will never give up fighting, ask your oncologist about the HDT & a transplant ....its not commonly done for ES, only 2 in Scotland for ES in 15 years & Ryan was the 2nd, OK his came back still but the girl before him has been in remission now for 3years (hers was on her tail bone) everyone is different you might be 1 of the lucky ones ....don't give up the fight ....the alternative is to die & your much to young for that....Ryan's on the 1st week of a 'trial drug' the medical profession have great hopes for it ....please please take the treatment & keep fighting take care Karen

Hi Katrina, I know your posting is a few months old. I just joined this site. I wonder how you are doing. My husband has sarcoma and we have been doiong clinical trials for the last year. We met a man with ewings sarcoma who was cured with one of the trials. It's called AMG479. Good Luck

 

On 10/10/2006 Katrina21 wrote:

hi im katrina. last year i had ewings sarcoma multi zoned. two tumors in my pevlis and one on my spine. i recived treatment chemo and radiothephy which worked great and my tumors disapeared. today i found out one of the tumors have returned and that i need chemo again. i dont think i could go through it again tho. does anyone know what my chances of living would be if i didnt have treatment? im only 21 and really dont want the treatment again. am i making the wrong choice? if the first lot of treatment removed it 4 a while then the cancer came back whats not to say that the same wont happen? i just cant live my life in a hospital and under so much stress what if???? am i doing the wrong thing????

Katrina,   my 22yr. old son has recently been diagnosed with Ewing's in his pelvis and spine.    I would really like to hear how you are doing.   Please hang in there.   Hope to hear from you soon.