My husband is 34 and was diagnosed with EC with mets to the liver and adrenal gland in 4/06, we have 3 boys.Josh 12, Jake 6, and matt jr. age 6 months. We found out two days before i gave birth to our third son that my husband has EC.
I have read many stories of EC patients and about 90% are bad, but I must say, you need to remain positive and strong. Find support in your loved ones.Find strength were you would have never looked before, there is hope, I promise you all, there is HOPE!!!
After seeing a DR. at Sloan Kettering in NYC and having our lives and dreams shattered,by hearing the Dr. say "go home to spend the rest of your time with your kids" we turned to a rather local practice on long island.We were set up with a rather young, but cocky Dr. who wasnt afraid to tell it how it was. Yeah the prognosis was bad, but he said we still have options.
From there my husband started 9weeks of chemo,then 28 days of radiation and chemo, all to prepare for surgery.Now surgery at first was not an option due to the size of the tumor(2 in x 2 inches)but if the tumor shrunk enough the Dr. could convince the surgeon to do the surgery.Well it did, the next Pet scan showed 90% of the cancer was gone.No cancer in the liver or adrenal and the primary in the esophogus shrunk so significantly.He was hit so hard with chemo due to his young age, twice the doses were given. Even with the terrible side effects my husband never said "no more" he never gave in or gave up one little bit. He found his stregnth in me and my kids. There was times where he was ssssssooooo sick that he wanted to give in ,but that would have meant giving in to the enemy.I always stay positive, even when I think the worst. He is now getting ready for surgery,Nov. 6th. Keep you posted.... Never ever stop fighting!!!!