Metastatic Sarcoma to Lungs - Second Time

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Metastatic Sarcoma to Lungs - Second Time

by Hubbyofsarcoma on Wed Nov 01, 2006 12:00 AM

Quote | Reply
My wife had surgery in 2000 for Synovial Soft Tissue Sarcoma in the neck. This was removed with clear margins and radiation therapy followed. Everything was fine for 5 years and then a year ago, upon a routine CT scan they found a spot. That was removed and the doctors were confident that this was it............ Well, here we go again... They found another spot on her lung and now we are scheduled to go for a consulatation to figure out what to do,Has anybody here had similar experiences that we could talk about. My wife is a wreck, we have a beautiful 8 year old daughter (who will probably never get to see siblings : ( ) and some support would be great ... thanks

Alternative

by Sherry46 on Thu Nov 02, 2006 12:00 AM

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My brother-in-law was diagnosed with a carcino sarcoma of the lung. He had a lobectomy and refused the chemo. We was given 6 - 18 months to live WITH the chemo. Instead he saw an herbalist he had been going to for neck problems (carpal tunnel) and began to drink a tea made from a tree (Ta Hee Bu) sp? and take several other herbs she recommended. He immediately began juicing organic carrots and studying about improving his immune system (instead of letting Chemo tear it down). He eats an almost entire organic diet, even red meat, chicken and fish. He will have survived 2 years next month WITHOUT the chemo. AND he has felt GOOD instead of nauseated and exhauseted. There has also been a tremendous amount of prayer. Our family has had a lot of experience with cancer and all other members did take the chemo..without the good outcome he has had. THERE IS HOPE! I am praying for your wife right now.

Angiosarcoma

by Samschiles on Sun Nov 19, 2006 12:00 AM

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Hi - I see that your message was dated early this month. I hope that since then, your consultation and prognoses has been good. Because there are some many ways for this type of cancer to manifest itself, it's hard to find someone who is going through a similar situation. Last Feb I was diagnosed with angiosarcoma and lost my left lung, after which I went through radiation therapy. Because my pscan came back showing that there wasn't any other cancer I didn't have to go through chemotherapy (thank goodness). Our concern is that I didn't have good margins. The cancer was actually in my pulmonary artery. It had attached my lung and, although my lung was 95 percent healthy, it was completely removed. I was very concern about the loss of my lung (among other concerns) as I was running 1/2 marathons and swimming 100 laps a day. I never gave it much thought (until I had the surgery of course) but to remove my lung, they went through my back. I didn't have the worry of caring for small children, my daughter want off to college before I was diagnosed and my son was also away completing his graduate work. The recovery from the surgery was actually not as bad as I thought it would be. My surgery was Feb 7 and I was back to working full time by mid March. The radiation treatment also wasn't as bad as I expected. I hope your wife doesn't have to go through this type of surgery, but I'm available to talk with her if she'd like. I have my next scan 12/08 and it's always an apprehensive time.

RE: Alternative

by Cluelessbutlearning on Thu Jan 04, 2007 12:00 AM

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Hi - if you are still checking, is it possible to ask your brother-in-law how to spell that tea? I tried a number of variations on google but didn't come up with anything. my dad went in to hospital for low platelets and anaemia a few weeks before christmas and it turns out he has angio-sarcoma tumors on his heart, lungs and probably gut as he's losing blood. we're trying every alternative we can find including a strict vegan detox diet and oxygen supplements. if u can find out the name of the tea i'd be extremely grateful. thank u x

On 11/2/2006 Sherry46 wrote:

My brother-in-law was diagnosed with a carcino sarcoma of the lung. He had a lobectomy and refused the chemo. We was given 6 - 18 months to live WITH the chemo. Instead he saw an herbalist he had been going to for neck problems (carpal tunnel) and began to drink a tea made from a tree (Ta Hee Bu) sp? and take several other herbs she recommended. He immediately began juicing organic carrots and studying about improving his immune system (instead of letting Chemo tear it down). He eats an almost entire organic diet, even red meat, chicken and fish. He will have survived 2 years next month WITHOUT the chemo. AND he has felt GOOD instead of nauseated and exhauseted. There has also been a tremendous amount of prayer. Our family has had a lot of experience with cancer and all other members did take the chemo..without the good outcome he has had. THERE IS HOPE! I am praying for your wife right now.

RE: Metastatic Sarcoma to Lungs - Second Time

by Carlysmimi on Tue Feb 06, 2007 12:00 AM

Quote | Reply

Hi, join ACOR a cancer online support group that has a sarcoma group. Several there have synovial sarcoma.

With Hope, MiMi

RE: Angiosarcoma

by Estebanw on Thu May 17, 2007 12:00 AM

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On 11/19/2006 Samschiles wrote:

Hi - I see that your message was dated early this month. I hope that since then, your consultation and prognoses has been good. Because there are some many ways for this type of cancer to manifest itself, it's hard to find someone who is going through a similar situation. Last Feb I was diagnosed with angiosarcoma and lost my left lung, after which I went through radiation therapy. Because my pscan came back showing that there wasn't any other cancer I didn't have to go through chemotherapy (thank goodness). Our concern is that I didn't have good margins. The cancer was actually in my pulmonary artery. It had attached my lung and, although my lung was 95 percent healthy, it was completely removed. I was very concern about the loss of my lung (among other concerns) as I was running 1/2 marathons and swimming 100 laps a day. I never gave it much thought (until I had the surgery of course) but to remove my lung, they went through my back. I didn't have the worry of caring for small children, my daughter want off to college before I was diagnosed and my son was also away completing his graduate work. The recovery from the surgery was actually not as bad as I thought it would be. My surgery was Feb 7 and I was back to working full time by mid March. The radiation treatment also wasn't as bad as I expected. I hope your wife doesn't have to go through this type of surgery, but I'm available to talk with her if she'd like. I have my next scan 12/08 and it's always an apprehensive time.

 

RE: Angiosarcoma

by Estebanw on Thu May 17, 2007 12:00 AM

Quote | Reply

 

On 5/17/2007 Estebanw wrote:

 

On 11/19/2006 Samschiles wrote:

Hi - I see that your message was dated early this month. I hope that since then, your consultation and prognoses has been good. Because there are some many ways for this type of cancer to manifest itself, it's hard to find someone who is going through a similar situation. Last Feb I was diagnosed with angiosarcoma and lost my left lung, after which I went through radiation therapy. Because my pscan came back showing that there wasn't any other cancer I didn't have to go through chemotherapy (thank goodness). Our concern is that I didn't have good margins. The cancer was actually in my pulmonary artery. It had attached my lung and, although my lung was 95 percent healthy, it was completely removed. I was very concern about the loss of my lung (among other concerns) as I was running 1/2 marathons and swimming 100 laps a day. I never gave it much thought (until I had the surgery of course) but to remove my lung, they went through my back. I didn't have the worry of caring for small children, my daughter want off to college before I was diagnosed and my son was also away completing his graduate work. The recovery from the surgery was actually not as bad as I thought it would be. My surgery was Feb 7 and I was back to working full time by mid March. The radiation treatment also wasn't as bad as I expected. I hope your wife doesn't have to go through this type of surgery, but I'm available to talk with her if she'd like. I have my next scan 12/08 and it's always an apprehensive time.

Sam,

Finally I found someone who has had similar experience like me. I am a 53 male in fairly good condition (no marathons, though). In 7/04 I was diagnosed with a large sacoma in the pulmonary artery near the heart. They reconstructed the artery and tried to clean the heart but did not have clean margins. After the operation they found two more nodules in the right lung. I went through several rounds of chemo and the nodules disappeared. A few months later I had trouble breathing and they found that the cancer had returned and was obstructing the pulmonary artery. I had radiotherapy and later more chemo. The nodules are still in the lung, but nowhere else. One possibilities is to do a neumonectomy. My question to you is how did you feel after they removed your lung? Do you have shortness of breath?  

Regards,

Esteban

 


 

RE: Metastatic Sarcoma to Lungs - Second Time

by AtulHope on Mon Jul 30, 2007 12:00 AM

Quote | Reply

 

On 11/1/2006 Hubbyofsarcoma wrote:

My wife had surgery in 2000 for Synovial Soft Tissue Sarcoma in the neck. This was removed with clear margins and radiation therapy followed. Everything was fine for 5 years and then a year ago, upon a routine CT scan they found a spot. That was removed and the doctors were confident that this was it............ Well, here we go again... They found another spot on her lung and now we are scheduled to go for a consulatation to figure out what to do,Has anybody here had similar experiences that we could talk about. My wife is a wreck, we have a beautiful 8 year old daughter (who will probably never get to see siblings : ( ) and some support would be great ... thanks

Hi

 I really hope everything is working out ok.  I am so sorry to hear about your wife's diagnosis last year.

 my wife was diagnosed with synovial sarcoma of salivary glands in 3/2006 and we went through entire treatment - surgery, RT and CT.

 If you want to exchange experiences, feel free to email me at

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

Best regards,

Atul

RE: Metastatic Sarcoma to Lungs - Second Time

by DaisyVirgil on Wed Sep 26, 2007 12:00 AM

Quote | Reply

On 7/30/2007 AtulHope wrote:

 

On 11/1/2006 Hubbyofsarcoma wrote:

My wife had surgery in 2000 for Synovial Soft Tissue Sarcoma in the neck. This was removed with clear margins and radiation therapy followed. Everything was fine for 5 years and then a year ago, upon a routine CT scan they found a spot. That was removed and the doctors were confident that this was it............ Well, here we go again... They found another spot on her lung and now we are scheduled to go for a consulatation to figure out what to do,Has anybody here had similar experiences that we could talk about. My wife is a wreck, we have a beautiful 8 year old daughter (who will probably never get to see siblings : ( ) and some support would be great ... thanks

Hi

 I really hope everything is working out ok.  I am so sorry to hear about your wife's diagnosis last year.

 my wife was diagnosed with synovial sarcoma of salivary glands in 3/2006 and we went through entire treatment - surgery, RT and CT.

 If you want to exchange experiences, feel free to email me at

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--

Best regards,

Atul


RE: Metastatic Sarcoma to Lungs - Second Time

by DaisyVirgil on Wed Sep 26, 2007 12:00 AM

Quote | Reply
My husband has a similar situation, Synovial Soft Tissue Sarcoma removed from his shoulder in 2001 it was large 5cm high grade, clear margins, he did radation followed by chemo. In 2004, 3 yrs later a mass (SS) appeared in his lungs and was removed with clear margins, and a new mass was removed last month (SS) 2007 from an area near the lungs. He is in a clinical trial now taking Perifosine (chemo pill). He took his first does this week. He has gotten chect CT scans every 3 months since 2001 so I feel like his docs keep a close eye on it. How is your wife? Has she done chemo?

On 9/26/2007 Daisy&Virgil wrote:

On 7/30/2007 AtulHope wrote:

 

On 11/1/2006 Hubbyofsarcoma wrote:

My wife had surgery in 2000 for Synovial Soft Tissue Sarcoma in the neck. This was removed with clear margins and radiation therapy followed. Everything was fine for 5 years and then a year ago, upon a routine CT scan they found a spot. That was removed and the doctors were confident that this was it............ Well, here we go again... They found another spot on her lung and now we are scheduled to go for a consulatation to figure out what to do,Has anybody here had similar experiences that we could talk about. My wife is a wreck, we have a beautiful 8 year old daughter (who will probably never get to see siblings : ( ) and some support would be great ... thanks

Hi

 I really hope everything is working out ok.  I am so sorry to hear about your wife's diagnosis last year.

 my wife was diagnosed with synovial sarcoma of salivary glands in 3/2006 and we went through entire treatment - surgery, RT and CT.

 If you want to exchange experiences, feel free to email me at

--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html-- " target="_blank" rel="nofollow">http://www.cancercompass.com/common/guidelines.html--

Best regards,

Atul



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