Mixed Mullerian Tumour

Hi just wondered if there is anyone out there who has or knows of anyone who has a mixed mullerian tumour? my mother has just lost a 2/half year battle to this.
I would love to hear from anyone who knows anything about this kind of cancer.

thankyou.

I was diagnosed with a MMT (uterine) in
June. I've had surgery, followed by external
beam and HDR brachytherapy. Right now I
am feeling physically fine, but having trouble
with anxiety. I know that this is a particularly
aggressive cancer, and that it is so rare that
there is pathetically little research available. I
have entered into the "vigilant" stage of my
battle, and am starting on a nutritional plan to
hopefully arm my immune system to identify
and destroy any lingering cells. I was sorry to
hear that your mother lost her battle, but
would be glad to make contact with others
who are still in the fight. I think we can be
good support for each other.

Hi snowqueen,
thanks for the reply,i'm sorry about your story and never really know what to say?
my mum was 72 when she first got diagnosed and as you can imagine we were so shocked! we always joked that she couldn't get a normal cancer OH NO she had to get a rare one!!!!initially she had a 2and a half lb tumour removed from her ovary aswell as the ovaries. she was an incredibly brave lady who would take whatever treatment was available, i know the first lot of treatment she had was the carboplatin which was good cos she didn't lose her hair but it seemed to mess all her bloods up.
over the years she had all number of treatments and always had a smile,i'm now worried that maybe me or one of my 2 sisaers will get it?
anyway snowqueen it was lovely to hear from you and if there is anything you need to know or that i may be able to help you with dont hesitate to ask. x
forgot to ask if your from uk? i am.
bye for now speak soon.

Thanks for your reply. Your Mum sounds like
she was incredibly brave woman! I just hope
I can be as brave in my battle! As far as I
know, and I've tried to do lots of research,
there is no genetic link with this cancer. And,
no I'm not from the UK...I live in sunny
Colorado!

Hi snowqueen,
thanks for the lovely message im sure you will manage well and it seems like you are well clued up on this illness, my mother got through it by having a positive attidude and a smile for all.
I'm still scared that i could get this illness but if i did there would be nothing i could do about it would there?
My oldest sister is going in hospital on the 26th january 07 to have a full hysterectomy as she is 45 and has 2 grown up girls so she asked the specialist who initially dealt with mum if he would remove it all as she only went in to see about having her remaining ovary out, this is due to her having an ectopic pregnancy 8 years ago.she cant seem to get her head around the fact that mum deteriorated within the space of 2 hours and wants some serious answers from the ward which she was on.
Wish i was in sunny colorado!!!
take care of yourself and i hope everything goes well for you.
xxx sue.

My friend just completed surgery, chemo and radiation for MMMT.  There is an email support list specific to MMMT (and carcinosarcoma and other mixed sarcfoma-based gyn tumors.  See http://health.groups.yahoo.com/group/UterineMMMT/ .

Hi, I'm so sorry to hear about your mother. She does sound like a fighter, much like my mother. My Mom was diagnosed with ovarian cancer in June 06', received chemo, a full hystorectomy, and another set of chemo both through IV & a port placed in her abdominal area. She was really sick after her last chemo treatment & was admitted to the hospital for her white blood cells being so low. She spent 3 1/2 weeks in the hospital for them to diagnose her with mmmt. My mother is only 42 years old (i'm 23) and it really doens make a whole lot of sense. She has the asides in her stomach which before the fluid contained cancer cells & now it does not & her CA125 is low. I'm just not sure how this all adds up. She is going to Birmingham, AL for a second opinion on Monday. Right now she is so frail, but fighting so very hard. Any information on this terrible disease would be greatly appreciated & support is wonderful too! Thanks!

 

Hi, in a couple of months I celebrate my sixth anniversary ... I was 48 when first diagnosed .. I was lucky because at the time we lived in France .. I can't praise the medical services highly enough for what they did for me . but it wa s hard and your mother is going to need all the support you can give her.Believe me it makes a difference.  If I can be of any help please write to me.

 

On 1/27/2007 Mchoc wrote:

Hi, in a couple of months I celebrate my sixth anniversary ... I was 48 when first diagnosed .. I was lucky because at the time we lived in France .. I can't praise the medical services highly enough for what they did for me . but it wa s hard and your mother is going to need all the support you can give her.Believe me it makes a difference.  If I can be of any help please write to me.

 

Hi,

Researching on MMMT of uterus, I came across these messages.

As u know all the help that we can get can be important.

My mom was diagnosed with MMMT stage1B in march 2006, had a complete hesytectomy, unfortunately no radiation.

result of which is metastasized lesion L3, suregry took that out, but another one has now been found in L1,doc. is saying go for radiation first and chemo latter. What I want to know which one should be done first.

with this type of cancer, we want to do everything for her.Its depressing. Please help

My sister who is 49 years old, has just been diagnosed with MMMT.  I am trying to gather information from others who has been through this or know of someone that has.  As all know, when you first hear of this your mind reels and you panic trying to get as much knowledge as possible. 

 My sister had a hysterectomy and biopsy of the lymph nodes in the pelvic area.  Unfortunately, the tumor has spread into the cervix and attached to the bladder.  The lymph nodes also have mets.  The dr has suggested chemo first followed by radiation if needed.  She has other health problems that complicate radiation therapy. 

 I know no one can tell me what to expect as every case is different.  However, I would like to know how other cases have went and turned out.  Good or bad.  Having someone else to talk to that has been there will help tremendously.  Thanks