Mixed Mullerian Tumour

Hello,

You are right this type of cancer is rare and aggressive. And quite scary.

There is a support group for this type of cancer that is quite helpful, and provides information. There are members who have the same case or one of ther loved ones, and they have all quite helpful.

Just email to the group below.

UterineMMMT@yahoogroups.com

I guess important is the diet that we follow. I am trying to do the same for my mom. Her recurrance was local, so she is currently undergoing radiation. We all hope for the best.

God Bless

On 3/19/2007 Little Sis v wrote:

My sister who is 49 years old, has just been diagnosed with MMMT.  I am trying to gather information from others who has been through this or know of someone that has.  As all know, when you first hear of this your mind reels and you panic trying to get as much knowledge as possible. 

 My sister had a hysterectomy and biopsy of the lymph nodes in the pelvic area.  Unfortunately, the tumor has spread into the cervix and attached to the bladder.  The lymph nodes also have mets.  The dr has suggested chemo first followed by radiation if needed.  She has other health problems that complicate radiation therapy. 

 I know no one can tell me what to expect as every case is different.  However, I would like to know how other cases have went and turned out.  Good or bad.  Having someone else to talk to that has been there will help tremendously.  Thanks

On 11/25/2006 Snowqueen wrote:

I was diagnosed with a MMT (uterine) in June. I've had surgery, followed by external beam and HDR brachytherapy. Right now I am feeling physically fine, but having trouble with anxiety. I know that this is a particularly aggressive cancer, and that it is so rare that there is pathetically little research available. I have entered into the "vigilant" stage of my battle, and am starting on a nutritional plan to hopefully arm my immune system to identify and destroy any lingering cells. I was sorry to hear that your mother lost her battle, but would be glad to make contact with others who are still in the fight. I think we can be good support for each other.

I'm a 40 yr. old son. my Mom was just diagnosed w/ "MMMT",i'm scared senseless and want any input that could ease my tensions.She is 66 yrs. old,and a waitress 5 days a week seems as strong as an ox ,today going to oncologist w /her no one else in family up to it.

On 11/29/2006 Scoobylover wrote:

Hi snowqueen, thanks for the reply,i'm sorry about your story and never really know what to say? my mum was 72 when she first got diagnosed and as you can imagine we were so shocked! we always joked that she couldn't get a normal cancer OH NO she had to get a rare one!!!!initially she had a 2and a half lb tumour removed from her ovary aswell as the ovaries. she was an incredibly brave lady who would take whatever treatment was available, i know the first lot of treatment she had was the carboplatin which was good cos she didn't lose her hair but it seemed to mess all her bloods up. over the years she had all number of treatments and always had a smile,i'm now worried that maybe me or one of my 2 sisaers will get it? anyway snowqueen it was lovely to hear from you and if there is anything you need to know or that i may be able to help you with dont hesitate to ask. x forgot to ask if your from uk? i am. bye for now speak soon.

I'm 40 yr.old son,and scared let me know of any special things to help my 66 yr old mother thru this,(meds.,treatments,practices,clinics,or any

words of encouragement wouldn't hurt. ty,& god bless