Stage iv Colon Cancer With Liver and Lung Mets

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Stage iv Colon Cancer With Liver and Lung Mets

by Heatherm on Fri Nov 10, 2006 12:00 AM

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Hi there, My name is Heather and I live in New Zealand. I am 34yo with a lovely husband and 1yo son. I was diagnosed with Stage IV Colon cancer in March 06. My CEA was extremely high and I was initially given two months to live. My liver was very enlarged and the primary concern. My first round of chemo was Xeloda & Oxaliplatin. I did not respond to these drugs and was changed to Xeloda & Irinotecan. In the mean time I was desperately searching for some help when I found a surgeon in early June who specialises in liver cancer and treatment. He removed a small (but obviously very nasty) tumour from my bowel (close to the cecum). He also inserted a port to my Hepatic Artery for direct 5FU and SIRT (high doses of radiotherapy). I recovered quickly and my CEA level dropped significantly. I have had 5 months of doing really well and feeling very positive. However, this week I found that my CEA level had started to rise again and a CT Scan revealed cancer throughout my lungs. My biliruben level is too high to take Irinotecan again so I am hoping it will decrease so I can start systemic chemo again in the next few weeks. This week has been hard and I am losing hope. Is there anyone out there who has recovered from lung mets??

Colon Cancer Stage iv

by Sarada on Fri Nov 10, 2006 12:00 AM

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Hi Heather,I am so sorry that your cancer has returned.As cancer patients, we live in a very lonely place even though we have supportive family and friends around.I can only imagine what you must be going through.But,you have to be positive. A lot of the healing is how we fight the cancer in our minds.Be a fighter.You will find that the days get better.God bless.

Return of Cancer

by Nofarm on Fri Nov 10, 2006 12:00 AM

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Heather: I am also sorry to hear about the return of your Cancer. My husband, 50, Stage IV Colon Cancer, is on his second go round of chemo for mets to the liver, but not the lung...for now, but there are some dark spots and we are watching. Burge could not take the Oxaliplatin (had bad nerve damage in 2004) but is now on Irinotecan+Erbitux. Until this past week, he was taking 5FU/Luc/Avastin and had very good results. When he had three weeks of radiation, the put him on Xeloda alone, but five liver spots returned. Our doctors say they will just keep trying as long as we get some good results. I know it is hard and very frightening, but don't give up. There are days Burge thinks he can't take any more, but then we get some good results and we start again. We have 14 and 22 year old sons and he says he keeps going for them. Please try to keep going. You don't have to be overtly "positive" every day, but don't give up hope at this point. We met a man who has been fighing 17 years (got colon cancer at 27). His advice was to take each morning one step at a time. Nikki

The Diet Which Could Support Immune System

by Yelena on Tue Nov 21, 2006 12:00 AM

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Hi Heather,I just finished the Chemo for reoccurence of Colon Cancer st.3 (in 2000).Now I 'm searching for the answere why I got it again. I almost convinced, that the lifestile: food, water ets.play big role in it, anless this is hereditary. I believe that you have to try eat fresh vegy.food now to support your immune system. Search on line and even this site for people who go this way.If you decided to do this you have to be strong and consistent for a long time. Bloss you and I hope to here from you some good news. Lena

Thanks

by Heatherm on Tue Nov 21, 2006 12:00 AM

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Thank you for your words of encouragement. I have just finished reading a book written by Elaine Nussbaum (Recovery from cancer) which is quite inspirational. Now I want to learn more about Macrobiotic cooking. I hope your husband is having a good week:-) Hope to write again soon. Heather.

Liver Mets

by Weadocm on Thu Nov 23, 2006 12:00 AM

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My father also had liver mets and although everyone said there was nothing they could do the ironi/lecavorin/5fu/avastin did a number on them and then we were sent to the university of pittsburgh medical center and had dr. david geller, a wonderful surgeon resect a multi lobe/multileasion liver for my dad...no one else would do it but dr. geller did it wonderfully and now 18 months later dad is still doing great...he never even got jaundiced. so if you are near pitt or just can consult with dr. geller on the phone, you may find your angel among us!

Never Give up

by Weadocm on Thu Nov 23, 2006 12:00 AM

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A great book, and actually the only book my dad read was called "There's no place like HOPE" it is wonderful and will help you stay positive. remember no matter the % (and we've stopped asking and don't want to know) of survival, someone has to be the 1%...and attitude gets them there. my dad has undergone colon cancer with mets to the liver and now lungs....with the original chemo, we are confident as are our doctors that it can be retarded....stay positive!

There's no Place Like Hope

by Nofarm on Thu Nov 23, 2006 12:00 AM

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WE have the book and agree it is worth the read.

Liver Mets

by Yesican on Tue Nov 28, 2006 12:00 AM

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Hi There, I read your message about your Dad. I was just wondering exactly what he had done to his liver? I have colon cancer that has spread to my fatty tissue and maybe my liver. I just had a second biopsy last week. The first one showed no cancer cells, but I have a lesion that showed up in my CT scan. So they will give me the results of this biopsy Thursday at Vanderbilt Hospital in Tennessee. I'm trying to get as much information as I can , so I can deceide what to do. Please let me know all about this perceedure. Thanks, Yesican

Liver Resection

by Weadocm on Tue Nov 28, 2006 12:00 AM

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Dad's colon cancer had spread to his liver. THe first surgeons said there was nothing to do but remove the primary colon cancer tumor and then enjoy his remaining days. we didn't believe that and finally found doctors that didn't either. dr. ghany at ohio state university was a great oncologist who gave dad the chemo he needed for 6 months and then sent him to the best liver surgeon around...dr. david geller at the university of pittsburgh in pennsylvania. he did a liver resection...where he took out the parts of dad's liver that still had the tumors on it (the chemo of 5FU/lecavorin/camptusar/ironitecan (some are generic names there) and avastin did a good number on many of them. dad had basically 60% of his liver gone and 12 inches of his colon in one comprehensive surgery thanks to two doctors who did a great tag team surgery. he did follow up chemo as well. dr. geller is very vigilant with dad. they removed all of the growing cancer in that surgery. dr. geller does many other procedures depending on the case...witha very high success rate. i'd highly recommend consulting with him with anything with the liver! dad is approaching the second year (Dec. 23, 2004) of his diagnosis. He feels great. He is still working every day. He golfs. He hunts. Dr. Geller was fabulous in giving him his life back...so by all means, tell dr. geller mike and his daughter michelle sent you ....best of luck to you!
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