25 Years Old With Malignant Melanoma

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25 Years Old With Malignant Melanoma

by Amandababy23 on Fri Dec 01, 2006 12:00 AM

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l just had a mole removed and just found out yesterday it is a malignant melanoma lm so scared l have to see a different doctor on the 7th of December and don't know what to do have you ever had one of these and what have you been through please email me. --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

Amanda d.

by Jimhall on Fri Dec 01, 2006 12:00 AM

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Hi, I'm 20 and have had melanoma. I had it taken off at 19 but I first noticed it at the age of 16. I've recently had a PET scan to see if it has spread. First of it depends on where your melanoma is. Mine was located in my eyebrow and I lost some of it. To minimize the large amount of scarring, etc. they done what is called Mohs Surgery. They take away a little bit of skin then test it each time to make sure they get it all. This is so that they can save as much healthy skin as possible so they won't disfigure you bad. But it probably depends on where your melanoma is, I doubt they would do the Mohs and say if it's on your back, they would proably do a larger excision. If it is extremely large they may do a skin graft. It's important to get another opinion from another doctor. Make sure you are directed if possible to an oncologist, because I never was until about a year later. I have read online it is standard procedure to have your lymph nodes checked for cancer if it has penetrated your skin depth to 1mm or greater. The nodes are usually in the neck, armpit and groin but other places too. As I understand they can only check them though surgery probably through SNL- Sentinal Node Biopsy. The nodes are usually checked if needed the nearest of the site. This unfortunately was never done for me and mine was 1.5mm. Try to get the pathology report from your doctor or ask them for the your Breslow depth- the amount of how much it has penetrated your skin usually shown in (mm). The Clark's level is another measurment but it's said to be not as good as the Breslow. I was told that if it's ulcerated it's worse than if it isn't. I had a shave biospy and this isn't suppose to be done becasue it can sometimes not read the Breslow amount accurately. Depending on how severe it is you might have other tests. I have a liver function tests (like having blood drawn), Chest x-rays and recently a PET scan. This is to check if it has spread to other places. Make sure you get regular check-ups and do a self-check for melanoma yourself regularly. Hang in there, I know a lot is running through your mind. Hang in there, I hope this helps some.

Atten:jim

by Amandababy23 on Fri Dec 01, 2006 12:00 AM

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hi its amanda can you plz email me --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----or im me on yahoo amandababy23

Location

by Dean_in_Georgia on Sat Dec 02, 2006 12:00 AM

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What area is your Melanoma located at.

mm

by Oncrx on Mon Dec 04, 2006 12:00 AM

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its not "malignant" melanoma unless you have mets somewhere. Did you have any lymph nodes removed? Any other signs of metastatic disease?

mm

by Amandababy23 on Mon Dec 04, 2006 12:00 AM

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all l know when l got the test results back from doc who removed the mole he told me and it is on the path report that it is a malignant melanoma

Also 25 With Melanoma

by Pt1982 on Mon Dec 04, 2006 12:00 AM

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i was originally diagnosed with melanoma when i was 23. It also started with a mole which was on my arm. I had it removed and everything looked good. Now, 2 years later, there is more melanoma in my lymph node. I recommend getting the centinal node biopsy because I didn't and I'm regretting it now. Try to be strong because there is a lot of different things out there to help. And try not to worry, the last thing you need is stress.

31 and Have Melanoma

by Cooper1 on Tue Dec 05, 2006 12:00 AM

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Hi Amanda, This September I had a mole removed from my arm and it turned out to be Melanoma. I am only 31 years and of course FREAKED OUT!!!! I was a stage 1B Melanoma. I had a surgery where they removed a wider margin of tissue around where the melanoma mole was plus also had the Sentinal Node Biopsy. The SNL kind of sucked but I'm glad that I did it. What they do is inject some radioactive fluid into your body and watch/map which lympnode the Melanoma could have drained into. This took over 2.5 hours for me because the fluid was moving SO SLOW. It sucked because there are these huge cameras really close to your body and all I could do was lay there- not fun. If I ever have to do that again- I'm going to make sure I bring someone with me into the room- so at least I have someone to talk to. Once they locate the lymphnode that the Melanoma may drained into they marked it on your body. So then I went into surgery where they removed the tissue around the Melanoma and also removed the marked Lymphnode. I woke up and my mom drove me home. I was sore for a couple days but really felt ok. My test results showed that there was no evidence of any Melanoma cells in the surrounding tissue nor was it in my lymphnode. YAHOO!!!! Now it's been a month later and yesterday I had my first appointment with an Oncologist. My surgeon recommended I see an Oncologist just to follow up. I talked with him and he wants me to have a PET SCAN to make sure that the Melanoma hasn't spread to any organs in my body. SCARY!!! I started crying like a baby but he told he's 85% sure that he won't find anything and that I have an excellent chance that the Melanoma was cured with surgery. If you want to email me personally you can reach me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html ----

RE: 25 Years Old With Malignant Melanoma

by Lauranc on Sat Dec 09, 2006 12:00 AM

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Amanda, I'm 28 and just went through surgery to have a nodular malignant melanoma removed off my leg.  It was 1.6 mm thick, and just like other posters, had a sentinal lymph node biopsy done.  The doctors were looking for which lymph nodes the cancer might have spread to, if it had.  Since my melanoma was on my leg, the closest lymph nodes were in my groin.  So, on the day of my surgery, they removed a small section of my leg around the melanoma (down to the muscle) and then biopsied 4 lymph nodes in my groin.  My leg is healed very well and the cancer had not spread anywhere! 

At first I had a hard time getting anyone to tell me the chances of this cancer spreading to my lymph nodes.  I was very scared and was thinking that it had DEFINITELY spread, since no one would give me any numbers.  But then my surgeon gave me a rough estimate and I felt much better about my chances.  I guess I just let my imagination run wild, and it got away from me.  I kept looking at my 2-year old and worrying about things I might miss. 

I was actually misdiagnosed over a year ago.  I asked a general practioner to remove this "thing" off my leg because I wasn't sure what it was.  She told me it was scar tissue from me probably shaving off a mole.  I knew I never had a mole there, but she was the expert, right, and if it was just scar tissue......well, my son (being a curious 2-year old) would always press on this "thing" on mommy's leg everytime I would wear shorts or a skirt.  This past fall I finally called a dermatologist out of the phone book to have another opinion about it.  He biopsied it, and it was a nodular malignant melanoma.  What had me so worried after I heard all of this was that it had been on my leg ever since I was pregnant. (Going on 3 years),  And I just thought to myself, "It has surely spread by now."

My point to you is this, you don't know what miracles are in store for you. Write down any questions you have for your doctors, get second opinions, listen to your inner self, and be thankful for each day!

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