Pancreatic Cancer

 

On 5/30/2006 Mary Ann mc wrote:

My 45 yr old husband dx with pc in November 2005, and we started going to CTCA in Tulsa and then transferred to PA,,what a GREAT organization. I would highly recommend anyone who has cancer to give them a try.

We are considering CTCA. in Tulsa.  May I ask why you tranferred to Pa?

My mother died of the disease at 69, a year after diagnosis in March of this year. If it's in the lymph system, it's pretty grim but if it hasn't metastasized somewhere, he may be able to get on some agressive chemotheraphy that could help. I'm not sure where you live but on the East Coast, there are specialists at Johns Hopkins, Columbia-Presbyterian, and Dana Farber. Good luck. I also want to mention I started a small business to fund pancreatic cancer research. Check out the website - it's based on my mother's artwork - www.yscards.com.

hi i was diagnosed with stage 4 pc aug 05.i had whipples sept 05.at age 31 he should try for whipples there is hope!!!!!!!

On 1/6/2004 Marian B. wrote:

My son's best friend is 31. He has just been diagnosed with pancreatic cancer. I think it has spread to the lymph nodes. From my reading, the median for this kind of cancer is an african-american, over 60, with diabetes! Is there anyone else out there with a similar story? If so, please respond with your treatments, support and any info you have thank you very much. Marian

 

I am so sorry. My husband was diagnosed 1 yr and 2 months ago with inoperable pancreatic cancer. We went to Mayos and they gave him 6 months. So far he is doing ok. First took 5 weeks of radiation and 5-FU and the tumor shrunk 50 % he was feeling really good. Then Gemzar and Tarcevia. Still no change in tumor size and his CA-19 -9 keeps going down. Then Cisplatin and Gemzar. He is now on Xeloda a chemo pill and doing so so.  This is a terrible disease and I can just tell you to find a good Dr. get 2nd opinions talk to people and search the internet. And try and have faith I know it is hard sooooo hard. My husband has a wonderful Dr. now and we have total faith in him and his knowledge. The norm for this disease is heavy smoker and drinker over 60 yrs. old and he is none of these things He just turned 40 the first part of this month. None of this is fair but if there is anything I can help you with please let me know.  Like i said he is doing good now and just get all the information you can and find a good Dr..

 

Hello.My mother was diagnosed with pancreatic cancer about 6 months ago and it was inoperable.The oncologist gave her 6 months without chemo and maybe 12 to 14 with chemo.It has been 6 months now and she is doing great.In fact, her CA-19-9 this week was 27, the normal being 37.5..We are now awaiting the results of her CT Scan.She looks and feels healthy.In fact, we have been out going to yard sales all day, just like we used to.She is taking no pain meds now except for her morphine patch, which she has to come off slowly. She has taken 7 treatments of gemzar and 10 days of 100mg Tarceva. When she was told that she only had this amount of time, we refused to give up!! We searched and searched and came across several things.I can't tell you exactly what has worked for her, but something has.I will be happy to give you a list of what she has been taking and/or I will be glad to give you our phone number so we can explain in detail.I am sure that God is the one taking this awful disease away from her, but I can't help thinking that he did it by sending us to the right information. This is a very bad form of cancer with a low cure rate.If your friend is like us, she is probably willing to at least give this a try. We are not selling anything and do not benifit what so ever from this. This is straight from our hearts as we know first hand how this affects you and your family.My heart and prayers are with your friend. God Bless..

 

On 1/6/2004 Marian B. wrote:

My son's best friend is 31. He has just been diagnosed with pancreatic cancer. I think it has spread to the lymph nodes. From my reading, the median for this kind of cancer is an african-american, over 60, with diabetes! Is there anyone else out there with a similar story? If so, please respond with your treatments, support and any info you have thank you very much. Marian

My Husband had the whipple procedure in May 2004, as soon as he was diagnosed we went right to U of M where they have a pancreatic center and much more knowledge than our local Doctors and Hospitals.  My advice is to go to the best facility you can find, and keep a positive attitude, be proactive and be your own advocate.  Take care

My father in law was diagnosed with pancreatic cancer. He had no appetite and I was told about a tea called Flor Essences that would help get his appetite. Flor Essences are sold in nutrition stores the 32 oz is approximately 40 dollars. It is worth every single drop of the tea. My father in law now has appetite and he is not losing much weight as he did.

 

On 11/9/2007 Crazzmom wrote:

Hello.My mother was diagnosed with pancreatic cancer about 6 months ago and it was inoperable.The oncologist gave her 6 months without chemo and maybe 12 to 14 with chemo.It has been 6 months now and she is doing great.In fact, her CA-19-9 this week was 27, the normal being 37.5..We are now awaiting the results of her CT Scan.She looks and feels healthy.In fact, we have been out going to yard sales all day, just like we used to.She is taking no pain meds now except for her morphine patch, which she has to come off slowly. She has taken 7 treatments of gemzar and 10 days of 100mg Tarceva. When she was told that she only had this amount of time, we refused to give up!! We searched and searched and came across several things.I can't tell you exactly what has worked for her, but something has.I will be happy to give you a list of what she has been taking and/or I will be glad to give you our phone number so we can explain in detail.I am sure that God is the one taking this awful disease away from her, but I can't help thinking that he did it by sending us to the right information. This is a very bad form of cancer with a low cure rate.If your friend is like us, she is probably willing to at least give this a try. We are not selling anything and do not benifit what so ever from this. This is straight from our hearts as we know first hand how this affects you and your family.My heart and prayers are with your friend. God Bless..

My father in law was diagnosed with pancreatic cancer stage iv on dec. 14, 2007. he is also on Tarceva and Gemzar what other methods of cure has your mother use. Thank you for the information. Happy to hear your mother is doing fine.

I live in burlington Vt, They were doing a studyfor pc. diringt their study they diag. a 20 yr. with pc! thank God for the study, and saving this young man's life!

I was diagnosed in August,07, and have been going to CTCA since the end of Aug. This is the most wonderful loving place in all the world and I have received the best care. Not only do they treat the cancer with Tomo radiation and chemo, they treat the mind, body, and soul. Everyone is so friendly, lots of hugs, and prayers. Don't give up and try to keep a positive attitude and know that this is treatable. My Dr. had said that surgery was out as I would not survive it. I feel so good and the cancer markers in my blood keep coming down and no cancer showed up on the scans. I have three more chemo treatments and another round of scans to see if I can come back every three months or what .