Glioblastoma IV End Stage

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Glioblastoma IV End Stage

by Cmoreroots on Wed Dec 27, 2006 12:00 AM

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My husbands best friend and business partner got the news last year that he has Glioblastoma Multiform.  They removed the turmor and he had radiation therapy  after to get any remaining cells.  They thought they had removed it all.  Well  they didn't and he started a round of Chemotherapy.  He was informed last Wednesday that it didn't do anything to stop or slow the new tumors.  He is now TERMINAL.   They do not give him much time as it is growing so fast.  in 30 days he will be blind.  He could last 30 days  maybe 90 days  and they say no way to 6 months.  I need to know what will happen as the time nears.  We are spending as much time with him as we possible can.  We will also be there as a support for his son who he is currently living with.   Any help will be greatly appreciated.

Patricia R

RE: Glioblastoma IV End Stage

by caring_daughter on Wed Dec 27, 2006 12:00 AM

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Dear Patricia,  I am sorry to hear that your husband's best friend and business partner has been diagnosed with GBM.  My 68-year-old dad was diagnosed with GBM 16 months ago.  To prepare myself for what lies ahead, I have gone to www.brainhospice.com  This site was developed by a daughter whose dad also was diagnosed with GBM and offers information on end-stage symptoms and a symptom time line based on other people's experiences with end stage GBM.  Of course, each person is unique so not everything occurs for every person.  This is merely a guideline that may help.  Also, has your husband's friend been referred to in-home hospice services?  This could be a huge support for all of you, now and later.  It is wonderful that you are walking with your friend and his son during this time.  We have found that some don't know what to say  or do since my dad's diagnosis so they don't call or visit.  It is great that you are there for your friend and his family.  I have found this message board to be a source of much information and support during the past 16 months as well.  Take care of yourself during this time as well.  Rondi

RE: Glioblastoma IV End Stage

by Cmoreroots on Wed Dec 27, 2006 12:00 AM

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RONDI:   thank you for your reply.  We would never walk away when our friend is being so brave.  We took him daily to Radiation therapy, went and waited during every chemo treatment.  Picked him up and just drove him around job sites he can no longer visit, kept him up to date on the business  just to try to keep his mind busy with other things.  It is totally stress for us  but would not change what we are doing.  How could we do less.  I know more about cancer than I ever want to.  My sister died 5 years ago of lung cancer.  Before she told us  we had bought property near her for our retirement home (NOT knowing).  When she told us she had cancer, my husband said go ahead and build a house there so I could spend more time with her.  All during her treatments  building was going on.  She never saw the house and we got the Occupancy Certificate the weekend after her funeral.  1 month to the day my youngest son was almost killed in a motorcycle accident.  He was in a coma for 3 weeks.  After he came to I found the reason my sister was taken so soon and so quick.  My son asked to see his aunt and I had to run from the room because we were not to upset him.  He told his dad that his aunt Carolyn was there with him and showed him the right gate to come home.  So he wanted to thank her.   We said nothing.  2 weeks later  he said he remembered that she had died, but he was sure that she was there with him.   I believe she was there for him and that is why God chose to take her quickly as she had a higher purpose.

My great grandmother alway said "Live for your family, because they are only on loan from one greater".  We live by that statement for our family and our FRIEND.  We are praying for a miracle, maybe 2 will happen in our lifetime.   Thanks again.

 

 

RE: Glioblastoma IV End Stage

by caring_daughter on Thu Dec 28, 2006 12:00 AM

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Dear Patricia,  You and your family are truly a blessing to your husband's friend and business partner.  I am sorry that your life has been touched by the tragic loss of your sister and by the awful accident of your son.  You are correct when you say that our lives are each touched with miracles.  It is important to remain hopeful.  Family and friends are such an important source of support during the trying times as you know.  I hope that your family friend is doing well.  My parents and their dog, Sam, moved in with us three weeks ago.  My family, including my husband and three children, continues to surround my dad (and mom) with love, caring, and supportive assistance.  Like your friend, my dad has faced each stage with such courage and strength.  He continues to show such courage, dignity, and strength each day!  We are cherishing each moment.  As you said, "our family is on loan from a higher one."  Take care, Rondi

RE: Glioblastoma IV End Stage

by Mlsklmtj on Thu Dec 28, 2006 12:00 AM

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hi ive found reading your messages interesting, and a source of strength,

my wife is 44,  she found out in sept she has gbm 4,  she now 3.5 months later is bed riden, speechless, except for crying or yelling cuz of pain,  im her husband who tends to her 24-7   hospis comes in now 3 mornings a week to help clean her and brings me supplies or meds.

i think she has checked off all the things on the time line except going into a coma for 1-5 days...

sorry for chatting, i guess i just needed to vent alittle

God Bless you all.........try to have a Happy New Yr.

Monte  (mlsklmt)

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