One patient with glioblastoma still alive nine years later
by Cmoreroots on Wed Dec 27, 2006 12:00 AM
My husbands best friend and business partner got the news last year that he has Glioblastoma Multiform. They removed the turmor and he had radiation therapy after to get any remaining cells. They thought they had removed it all. Well they didn't and he started a round of Chemotherapy. He was informed last Wednesday that it didn't do anything to stop or slow the new tumors. He is now TERMINAL. They do not give him much time as it is growing so fast. in 30 days he will be blind. He could last 30 days maybe 90 days and they say no way to 6 months. I need to know what will happen as the time nears. We are spending as much time with him as we possible can. We will also be there as a support for his son who he is currently living with. Any help will be greatly appreciated.
by caring_daughter on Wed Dec 27, 2006 12:00 AM
RONDI: thank you for your reply. We would never walk away when our friend is being so brave. We took him daily to Radiation therapy, went and waited during every chemo treatment. Picked him up and just drove him around job sites he can no longer visit, kept him up to date on the business just to try to keep his mind busy with other things. It is totally stress for us but would not change what we are doing. How could we do less. I know more about cancer than I ever want to. My sister died 5 years ago of lung cancer. Before she told us we had bought property near her for our retirement home (NOT knowing). When she told us she had cancer, my husband said go ahead and build a house there so I could spend more time with her. All during her treatments building was going on. She never saw the house and we got the Occupancy Certificate the weekend after her funeral. 1 month to the day my youngest son was almost killed in a motorcycle accident. He was in a coma for 3 weeks. After he came to I found the reason my sister was taken so soon and so quick. My son asked to see his aunt and I had to run from the room because we were not to upset him. He told his dad that his aunt Carolyn was there with him and showed him the right gate to come home. So he wanted to thank her. We said nothing. 2 weeks later he said he remembered that she had died, but he was sure that she was there with him. I believe she was there for him and that is why God chose to take her quickly as she had a higher purpose.
My great grandmother alway said "Live for your family, because they are only on loan from one greater". We live by that statement for our family and our FRIEND. We are praying for a miracle, maybe 2 will happen in our lifetime. Thanks again.
by caring_daughter on Thu Dec 28, 2006 12:00 AM
by Mlsklmtj on Thu Dec 28, 2006 12:00 AM
hi ive found reading your messages interesting, and a source of strength,
my wife is 44, she found out in sept she has gbm 4, she now 3.5 months later is bed riden, speechless, except for crying or yelling cuz of pain, im her husband who tends to her 24-7 hospis comes in now 3 mornings a week to help clean her and brings me supplies or meds.
i think she has checked off all the things on the time line except going into a coma for 1-5 days...
sorry for chatting, i guess i just needed to vent alittle
God Bless you all.........try to have a Happy New Yr.
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