Primary Peritoneal Cancer

Hello

 Mom (65) was diagnosed with this cancer 1-3-07 she has had total hysterectomy 10 year ago but they left her omentum. Next week she will have surgery and then start the chemo. They have drained her twice already 5 liters each time. She only weights 115lbs so I am very worried about how she is going to handle all of this. Like many of you, there are not many worth while or promising web sites. I am doing my best to think positive and to be upbeat around her and family. This is a hard for me to handle, I do not want some damn cancer taking over my mom. I can deal with old age. Needed some place to vent and with people who could identify 

I understand what you are going through.  There is no real website with real information that is not outdated. This is not a new cancer in any way and it is mind boggling to me that there is so little information available!  I too, am new to this website and posted my first message last night (see:  http://www.cancercompass.com/message-board/message/all,8704, ) ...  My mom was about 150 when this all began in November and she is now 125.  Your mom's eating habits will change indeed.  It is so difficult to convince them to eat "something" when they have no desire.  Don't push it is all I can tell you.  The doctors told us now is not the time to worry about "what you are eating", if there is something you crave or want, just eat it and indulge.  We are recieving all our treatments on the edge of Northeast Philadelphia and a very renoun facility (Fox Chase Cancer Center); but I've not read that there is one place better than any others.  I vouch that this has got to be one of the most difficult times in my life because there is NO ONE who is your mom and to watch them fight this horrible cancer is very hard at times.  Be strong when you are around her and be honest.  When your mom wants to express her fears, let her.  Share yours too.  Yes, you will probably both cry together; but you both have to be honest about your feelings because it is truly important.  I can only wish you and more importantly, your mom, the absolute best and if you need to vent - please do, because I am right here with you going through what you are and would love to be able to talk to someone going through the same motions I am right now.  Take care & God Bless.

Mom was drained again on thursday and yesterday she doesnt feel well when she is full of the liquid and then when she gets drained she is at least hungry but tired. I am affraid to ask what she is thinking. She seem uncomfortable and anxious I know she is pain but I also think she is thinking alot. She has 11 grandchildren and I know she wants to see them get older. Her mother just passsed in Aug. 06. Thursday she will be going into BJC St. Louis for debulking and then staying for awhile untill she receives her first round of Chemo. She is a very strong hearted and willing. Mother and is one hell of a fighter when she is at full par I just pray for her to keep thinking possitive. I cannot stand the thought of her leaving soon. I dont care if you call it denial I just will not think that way. It scares me to hug her, I am affraid to hurt her although I know she wants me to. I am also affraid to break down in front of her I do not want her to know I am scared of lossing her.

Hello.  My father has had the debulking surgery twice for PMP.  Please look at www.pmpawareness.org.  It is a great site for information.  There are links to patients' personal websites (caringbridge,etc) that chronicle their journies with this disease.  There is also a great group on yahoo called pmpbellybuttons.  Great for support and information. 

Sincerely, Anna

I forgot to mention my father's name.  Jim Eastburn.  His story is on the PMP website if you are interested.  Please let me know if I can help in any other way.  I understand how frightening this all is and also how very overwhelming it can be.

Sincerely, Anna

 

On 1/9/2007 Andy z wrote:

Mom was drained again on thursday and yesterday she doesnt feel well when she is full of the liquid and then when she gets drained she is at least hungry but tired. I am affraid to ask what she is thinking. She seem uncomfortable and anxious I know she is pain but I also think she is thinking alot. She has 11 grandchildren and I know she wants to see them get older. Her mother just passsed in Aug. 06. Thursday she will be going into BJC St. Louis for debulking and then staying for awhile untill she receives her first round of Chemo. She is a very strong hearted and willing. Mother and is one hell of a fighter when she is at full par I just pray for her to keep thinking possitive. I cannot stand the thought of her leaving soon. I dont care if you call it denial I just will not think that way. It scares me to hug her, I am affraid to hurt her although I know she wants me to. I am also affraid to break down in front of her I do not want her to know I am scared of lossing her.

 

Hello!

My Mom also has PPC and is being treated at BJC. She was diagnosed on Oct 16 2006 and had surgery on the following Monday. They have been doing very aggressive chemo since. Only 2 more treatments to go!  I can not believe how sick she is and how helpless we all are! I am interested in hearing about how they have handled your mother's treatment and what not. I also could use some outside support as both my sisters live far away and I guess you could say I am somewhat in the denial phase too.

 I hope to talk to you soon.

 Thanks

Jessica