One patient with glioblastoma still alive nine years later
by Jwmom on Thu Jan 04, 2007 12:00 AM
my mom (68yrs of age) has just been diagnosed with stage 4 nonsmallcell lung cancer. it has spread to the bones in her spine and not sure if anywhere else (not brain). she smoked for 25+ years but quit nearly 10 years ago. the dr has told her that it is not curable and not operable and that she has anywhere from 2 months to 1 year to live. i ahve so many questions: How is it possible that it has become this advanced without anyone detecting it sooner? How long does someone typically have cancer like this before it gets to stage 4? is this kind of prognosis really true? it is so awful. she is in so muck pain and is terribly afriad - we all are. does anyone know of any successful treatment options? what in addition to whatever chemo and radiation the dr does can she do to prolong her life? thank you.
by Joannandmimi on Fri Jan 05, 2007 12:00 AM
On 1/4/2007 Jwmom wrote:my mom (68yrs of age) has just been diagnosed with stage 4 nonsmallcell lung cancer. it has spread to the bones in her spine and not sure if anywhere else (not brain). she smoked for 25+ years but quit nearly 10 years ago. the dr has told her that it is not curable and not operable and that she has anywhere from 2 months to 1 year to live. i ahve so many questions: How is it possible that it has become this advanced without anyone detecting it sooner? How long does someone typically have cancer like this before it gets to stage 4? is this kind of prognosis really true? it is so awful. she is in so muck pain and is terribly afriad - we all are. does anyone know of any successful treatment options? what in addition to whatever chemo and radiation the dr does can she do to prolong her life? thank you.
There's always hope!!!
First and foremost, lots of prayer from her and all who love and surround her. This is the most effective way to prolong her life - appeal to the Lord.. Jesus still heals today so don't let a doctor or anyone else but God tell you when your end is. KEEP THE FAITH - ENDURE TO THE END. :) This is really a smart move because you prepare spirtually for the worst (staying close to the Lord), but EXPECT THROUGH YOUR FAITH IN GOD THE BEST.
Oh, and stay positive for her - not with this sense of ending - because you truly don't know when her end will be. The positive ways you share, and your faith, truly do help the most when someone is ill. Also doing all the legwork for her with regard to her treatments, etc. is a blessing since the shock usually keeps the patient incapable of making smart decisions by themselves. Give her your input on possible treatments for her and give her your love mostly. Another thing that my family did for me was all chip in for me to go to an alternative hospital in Tijuana - Oasis of Hope. I went for a 10 day stay and I absolutely am so thankful I did. The place was a blessing for me and the protocol they gave me was very helpful... I try to go back once a year for a booster (when I have the funds, of course).
Get a second opinion (this is most important to making smart decisions).
Second, I'm not sure what is painful to her - the bone mets or the lung mets but there's a procedure - it's called radiofrequency ablation. They do it at Sloan Kettering and I'm sure elsewhere if you search around. But, I hear it has been extraordinarily successful in treating lung and other mets. Am going to see about the bone met radiofrequency ablation for my own situation. Strongly suggest she do same. If pain is from one or two tumour sites (it is easily ablated). If more than 2, another session of ablation would be warranted. People w/pain have gone from 8 in pain scale to 0). AND IT IS MINIMALLY INVASIVE SURGICAL SITUATION Or, she could opt for radiation for mets on back (I've had radiation on several sites for bone mets).
Third, melatonin (at any vitamin shop) before bedtime - it relieves pain, makes you a little sleepy, AND HAS ANTI-CANCER PROPERTIES.
Fourth, buy her a juicer (and organic greens, and carrots, etc.) to start drinking daily.
Mostly, keep the faith.
by Jwmom on Tue Jan 09, 2007 12:00 AM
thank you very much. i will look into the radiofrequency treatment. she has been undergoing radiation on the spiinal bones. i think they are hoping to reduce the pain. but now it appears that the tumor has eaten up most of the bone in at least one of her vertebrea. so the neurosurgeon thinks she needs to be in a neck to waist brace and spinal fusion surgery which i think is a major operation etc. haven't even yet figured out the treatment for the tumor on her lung - it is the tumors on her spinal bones that are causing her the most pain i believe.
anyway, i apprecaite your thoughts and advice. thank you very much.
by Ttbmaat on Thu Jan 11, 2007 12:00 AM
I am so fimiliar with your fears. My dad was just diagnosed in July with Stage IV adenocarcinoma in both his lungs. He is just 53 yrs old. It was so weird because he was cutting down a tree for a family member (which he's always been able to do regularly), but he fell 35 yes 35 feet and plumited to the ground. He was unconscious and was rushed to the hospital. He had many fractures in his ribs, vertebral column, and his pelvis. On top of all this he also had a collapsed lung...repairing the lung from this injury, the docs found the cancer. My dad was extremely healthy. He worked outdoors all his life. Well from oodles of test we found that he was stage IV, in both lungs, and in his lymph nodes. He too is considered terminal. The doctor said he had until about October of '06. He still opted for chemo. He's been on cisplatin and navelbine. He started chemo Aug 5. The end of October he had his scans repeated and the only cancer detected was the large tumor in the right upper lung (and it had shrunk 1/2 the size!) The doc said this is just remarkable. I know everybody handles the treatments differently, but I hope this gives you some encouragement. He has been eating healthy and following his docs orders exactly and most of all staying positive. It has been through alot of faith and prayer that my two brothers and I are getting through this. We too still have our ups and downs, but all in all it is rough for me too. Medically, my dad should not have survived the fall, but he did and he's healed from it. He had absolutely no symptoms either. I feel that our good Lord "helped" him out of that tree so he could get this taken care of too. Good Luck and God Bless!
by Chell on Mon Jan 15, 2007 12:00 AM
My mother, age 77, also was been diagnosed with non-small cell lung cancer the week before Christmas '06. She too smoked for 20+ years and stopped about 15 years ago. And just like with you the doctors also told her it was not curable. Because my 4 yr. old son was diagnosed with ALL (leukemia) in May '06 I have been gathering information and when my mom was diagnosed a friend of mine had a pastor who had cancer and was taking a crystalline salt called cesium chloride and has had FANTASTIC results. He continues to live past the projected few months he was given by his docs. Cesium chloride works by raising the pH levels in the body, thus oxiginating the cells and killing, yes killing, the cancer. Along with the information about cesium chloride we were introduced to another mineral called Zeolite. Zeolite works by attracting and traping cancer and killing, once again yes killing, it at its NUCLEUS...its very core and then its removed through the body because it is a detoxifyer. Tomorrow I am headed to Maine to join my sister who is there caring for my mom in the hospital and I will be bringing these two supplements along to administer to her. I too, as some of the others that replied seem to possibly be, am a Christian and KNOW that God is the ultimate healer. Our job is to apply the spoken word of God to every situation, believe Gods word, and be prepared to accept whatever result He ultimately allows--FAITH. Along with that I know that God gives man wisdom to find answers to lifes ugliness--WORKS. Everything we need to take care of us can be found in nature. A great deal of medicines doctors use today were derived from natural sources or are sythetic versions of natural remedies. So as the Bible tells us, FAITH (prayer and the use of Gods [spoken] word--the Bible correctly applied and WORKS (doing everything you know to do to take care of a situation or circumstance) go hand in hand. Faith without works is DEAD. As I see it my mom and yours have nothing to lose by being supplimented with harmless minerals and EVERYTHING to gain--LIFE.
For more information here are the two articles/sites that gave me the very encouraging information I need and plan to use:
cesium chloride for cancer-(type this into google and it should pull up the article. If not contact me at -- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --
and I will email it to you
Let me know how mom does!
In His service,
by Hopefulmary on Fri Feb 02, 2007 12:00 AM
Yes there is hope, my husband was dx'd in December with THANK GOD Stage I non small cell carcinoma of the lung and is having surgery next week,,,,My mother on the other hand was not so lucky but that was over 20 years ago and the treatment options are soooo much better...today and YES get a 2nd opinion.........We are taking my husband to MD Anderson in Houston, all they do is specialize in the treatment of Cancer. They are terrific!!!!
In doing extensive research of the internet I have found two alternatives, to go along with her conventional treatment, that seem to be backed up by a great deal of scientific tests, studies, etc.
The first is AHCC, get your Mom on that ASAP, this is a mushroom extract formulated by the Japanese and is found in any health food store or online.. ImmPower or Source Naturals sells it. It is costly per month, about $50.00 a bottle, but it has had GREAT results in boosing immune systems, halting the growth of cancer and even killing it. The GREAT thing is that AHCC has NO.....NO side effects and CAN CAN be used while undergoing Radiation and or chemotherapy, It actually boosts the NK killer cells that kill cancer and it will help greatly with the side effects of these treatments.
Also the the Doctor Joanna Budwig protocol. It is Flax OIL, cold pressed, found only in a health food store in the refrigetated section. Barleans is the best, with lignans...Anyway you mix a couple table spoons of that with 1/4 cup cottage cheese and it has shown to have amazing results on all types of cancer. Just type in Cottage Cheese and Flax Oil into your Google search engine and you will see countless stories about this protocol.
I have had my husband on both the AHCC and the Flax Oil for the past few months since we knew something was up, so that his cancer would stay in check before surgery. He is doing very well and I really believe it has part to do with these 2 things.
I have read about the Zeolite, but if you mom undergoes Chemo, it may have a negative affect, you have to let you doctor know.
Good veggie and fruit diet with lot of fish and have her take CO Q10, Vitamin,D3 and Ester C 1,000+ MG at least.... these are also great for cancer and antioxidants, etc.
I also agree GOD has a big part in all of this.. He is in control and once you really believe that to be true, he will lead you and your Mom thru this and a sense of Peace and calm will come over you
God bless and good luck to you!
by healthynow on Sat Nov 24, 2007 12:00 AM
Also, since cancer feeds on sugar, and we all crave it!...You need to get the chocolaterave.com chocolate nuggets!
4 of them are like having 18 cups of spinach in fighting free radical abilities (antioxidants).
We have cancer in the family and I eat this, so far no more skin cancer and no cancer elsewhere.
I know many times cancer patients feel deprived because they want the sweets and yet it's not good for you.
These chocolates are the heatlhiest treat on the market today!
It has helped to fight leukemia by 80% I've heard.
by thorluv on Sun Jan 13, 2008 12:00 AM
I read your message and my heart ached because I feel just like you. My mom (age 72) was dx with lung cancer (January 2007) that has spread to her spine and rib (July 2007). I feel so helpless. The oncologist has discontinued treatment. I don't know what will happen without any further treatment. Have you pursued any of the recommendations given by other folks on this site? Is your Mom experiencing pain?
I feel so alone and would love to be able to share my experiences with someone going through the same.
I hope you are doing ok. Sincerely Michelle
by sarahday on Thu Mar 06, 2008 12:00 AM
Hello! My mother has stage 4 lung cancer and is not operable. She had a few brain mets and one lymph node on her neck affected.She was diagnosed mid January and has had 2 chemo cycles and has some incredible results. The lung tumor has reduced over 60% and the brain mets are evidently gone. We all pray alot and hope for the best....maybe even a miracle!
Anyway, I was interested in more information about Oasis of Hope in Tijuana....what do they do there? Thanks!!
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Destination: HOPE. Cancer care that is worth the trip.
Over 84% of our patients travel to our hospital from another state
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