What does it mean when you test positive for JAK 2

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RE: What does it mean when you test positive for JAK 2

by dalt1 on Thu May 26, 2011 03:53 AM

Quote | Reply

On Mar 28, 2009 12:00 AM melash wrote:

 

On 11/25/2007 Ethan wrote:

Call Mayo Clinci, they are on line to have a cure within 1-3 yrs.  Jak2 is where all the research is being done.

Is there any further information on this?  Also, is there any alternative therapies/supplements that have worked when JAK2 Positive?

I am JAK 2 positive and was detected at the time of my being diagnosed with myelofibrosis.

My research indicates Emodin which is an active component of traditional chinese/Japanese medicine.

Emodin comes from the Root and Rhizome of Rheum Palmatom commonly known as chinese rhubarb which is a plant, not the common variety sold in fruit shops. I believe there is several similar plants, but only what I described above works to switch off the JAK 2 gene.

I might add, that I have never used chemo or other drugs to control my myelofibrosis which is a nasty and fatal bone marrow disease. I take sodium selenenite along with high doses of pharmaceutical vitamin c and bi carb. All my tests are normal including platelets and haemoglobin.

Alternative medicine seems to be the only option as my oncologist stated that they will never find a cure, just an expensive drug to control the disease. I can be contacted for the exact amounts I take of Vit. C, selenium and bi carb.

 

Dalt

RE: What does it mean when you test positive for JAK 2

by beverlyann on Fri Nov 11, 2011 03:05 PM

Quote | Reply

On May 26, 2011 3:53 AM dalt1 wrote:

On Mar 28, 2009 12:00 AM melash wrote:

 

On 11/25/2007 Ethan wrote:

Call Mayo Clinci, they are on line to have a cure within 1-3 yrs.  Jak2 is where all the research is being done.

Is there any further information on this?  Also, is there any alternative therapies/supplements that have worked when JAK2 Positive?

I am JAK 2 positive and was detected at the time of my being diagnosed with myelofibrosis.

My research indicates Emodin which is an active component of traditional chinese/Japanese medicine.

Emodin comes from the Root and Rhizome of Rheum Palmatom commonly known as chinese rhubarb which is a plant, not the common variety sold in fruit shops. I believe there is several similar plants, but only what I described above works to switch off the JAK 2 gene.

I might add, that I have never used chemo or other drugs to control my myelofibrosis which is a nasty and fatal bone marrow disease. I take sodium selenenite along with high doses of pharmaceutical vitamin c and bi carb. All my tests are normal including platelets and haemoglobin.

Alternative medicine seems to be the only option as my oncologist stated that they will never find a cure, just an expensive drug to control the disease. I can be contacted for the exact amounts I take of Vit. C, selenium and bi carb.

 

Dalt

Dalt,

I am intrigued by your blog.  I am currently taking 2000mg of Hydroxyurea daily and have an appt. at the mayo clinic.

PLEASE tell me about the exact amounts of the pharmaceutical vitamin c and bi carb (what is that) and sodium selenite (selenium) you are taking and where to get?

Also, does your diet play into all of this? What does that look like on a daily basis?  Thanks.  Bev

RE: What does it mean when you test positive for JAK 2

by dalt1 on Sat Nov 12, 2011 12:55 PM

Quote | Reply

On Nov 11, 2011 3:05 PM beverlyann wrote:

On May 26, 2011 3:53 AM dalt1 wrote:

On Mar 28, 2009 12:00 AM melash wrote:

 

On 11/25/2007 Ethan wrote:

Call Mayo Clinci, they are on line to have a cure within 1-3 yrs.  Jak2 is where all the research is being done.

Is there any further information on this?  Also, is there any alternative therapies/supplements that have worked when JAK2 Positive?

I am JAK 2 positive and was detected at the time of my being diagnosed with myelofibrosis.

My research indicates Emodin which is an active component of traditional chinese/Japanese medicine.

Emodin comes from the Root and Rhizome of Rheum Palmatom commonly known as chinese rhubarb which is a plant, not the common variety sold in fruit shops. I believe there is several similar plants, but only what I described above works to switch off the JAK 2 gene.

I might add, that I have never used chemo or other drugs to control my myelofibrosis which is a nasty and fatal bone marrow disease. I take sodium selenenite along with high doses of pharmaceutical vitamin c and bi carb. All my tests are normal including platelets and haemoglobin.

Alternative medicine seems to be the only option as my oncologist stated that they will never find a cure, just an expensive drug to control the disease. I can be contacted for the exact amounts I take of Vit. C, selenium and bi carb.

 

Dalt

Dalt,

I am intrigued by your blog.  I am currently taking 2000mg of Hydroxyurea daily and have an appt. at the mayo clinic.

PLEASE tell me about the exact amounts of the pharmaceutical vitamin c and bi carb (what is that) and sodium selenite (selenium) you are taking and where to get?

Also, does your diet play into all of this? What does that look like on a daily basis?  Thanks.  Bev

Hi Bev,

When initially diagnosed, I took daily around 60 grams orally of pharmaceutical grade vitamin c, 5 ml of liquid sodium selenite (selenium) and 4-5 grams of pharmaceutical grade bi carb. The bi carb was to bring my body alkaline as it was very acidic. It depends where in the world you are in regards to purchase selenium.

In regards to my diet, I alway ate healthy and never smoked or drank alcohol, so this wasn't a factor. Two years on, I only take 15 - 20 grams of vitamin c daily along with 1 - 2 ml of selenium and some bi carb. I haven't seen my oncologist for over a year now as my health is fine. If you want more details, contact me direct on info (at) e-ze  (.) com (.) au .

A chap in Bulgaria recently followed my regime after consulting with his doctor. It only took 4 weeks for him to get an all clear reading which amazed his doctors. Others have take a bit of this or that, but never enough to cure a common cold let alone MF, so their results have been as expected. I might add, I am not dispensing medical advice, but will supply my research to sufferers to let them make up their mind on how to treat this insiduous disease.

RE: What does it mean when you test positive for JAK 2

by kirstyw on Thu Jan 05, 2012 09:58 AM

Quote | Reply

On Nov 12, 2011 12:55 PMdalt1wrote:

On Nov 11, 2011 3:05 PMbeverlyannwrote:

On May 26, 2011 3:53 AMdalt1wrote:

On Mar 28, 2009 12:00 AMmelashwrote:

 

On 11/25/2007 Ethanwrote:

Call Mayo Clinci, they are on line to have a cure within 1-3 yrs.  Jak2 is where all the research is being done.

Is there any further information on this?  Also, is there any alternative therapies/supplements that have worked when JAK2 Positive?

I am JAK 2 positive and was detected at the time of my being diagnosed with myelofibrosis.

My research indicates Emodin which is an active component of traditional chinese/Japanese medicine.

Emodin comes from the Root and Rhizome of Rheum Palmatom commonly known as chinese rhubarb which is a plant, not the common variety sold in fruit shops. I believe there is several similar plants, but only what I described above works to switch off the JAK 2 gene.

I might add, that I have never used chemo or other drugs to control my myelofibrosis which is a nasty and fatal bone marrow disease. I take sodium selenenite along with high doses of pharmaceutical vitamin c and bi carb. All my tests are normal including platelets and haemoglobin.

Alternative medicine seems to be the only option as my oncologist stated that they will never find a cure, just an expensive drug to control the disease. I can be contacted for the exact amounts I take of Vit. C, selenium and bi carb.

 

Dalt

Dalt,

I am intrigued by your blog.  I am currently taking 2000mg of Hydroxyurea daily and have an appt. at the mayo clinic.

PLEASE tell me about the exact amounts of the pharmaceutical vitamin c and bi carb (what is that) and sodium selenite (selenium) you are taking and where to get?

Also, does your diet play into all of this? What does that look like on a daily basis?  Thanks.  Bev

Hi Bev,

When initially diagnosed, I took daily around 60 grams orally of pharmaceutical grade vitamin c, 5 ml of liquid sodium selenite (selenium) and 4-5 grams of pharmaceutical grade bi carb. The bi carb was to bring my body alkaline as it was very acidic. It depends where in the world you are in regards to purchase selenium.

In regards to my diet, I alway ate healthy and never smoked or drank alcohol, so this wasn't a factor. Two years on, I only take 15 - 20 grams of vitamin c daily along with 1 - 2 ml of selenium and some bi carb. I haven't seen my oncologist for over a year now as my health is fine. If you want more details, contact me direct on info (at) e-ze  (.) com (.) au .

A chap in Bulgaria recently followed my regime after consulting with his doctor. It only took 4 weeks for him to get an all clear reading which amazed his doctors. Others have take a bit of this or that, but never enough to cure a common cold let alone MF, so their results have been as expected. I might add, I am not dispensing medical advice, but will supply my research to sufferers to let them make up their mind on how to treat this insiduous disease.

Hi

I tried to email you but it bounced back.

I have had Jak2 for 2 yrs now and have had HEAPS of troubles with it.  I am on agrylin and have had times where my body rejects the tablets!  I have tried every treatment available in Australia and none have been successful or responded like the agrylin.  My specialist said that I have a good 10 years maybe.  If I'm not on agrylin my blood is that sticky that I can't feel my legs or arms and I can't walk or even see at times.  I can't stand taking tablets.  So I researched and found out about exercising.  I have trained similar to the army training 2 times a day 5 days a wk and for the first time in ages my bloods are perfect!  I am still on the tablets but that's my next step to be free from them!  I have gone from fortnightly visits and frequent hospitalisation to now every 8wks! I am keen to talk to you more about what you are doing!  Is there any other way to contact you? my email is

Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html 

RE: What does it mean when you test positive for JAK 2

by markbasky on Tue Jan 15, 2013 02:31 AM

Quote | Reply

On Jan 05, 2012 9:58 AM kirstyw wrote:

On Nov 12, 2011 12:55 PMdalt1wrote:

On Nov 11, 2011 3:05 PMbeverlyannwrote:

On May 26, 2011 3:53 AMdalt1wrote:

On Mar 28, 2009 12:00 AMmelashwrote:

 

On 11/25/2007 Ethanwrote:

Call Mayo Clinci, they are on line to have a cure within 1-3 yrs.  Jak2 is where all the research is being done.

Is there any further information on this?  Also, is there any alternative therapies/supplements that have worked when JAK2 Positive?

I am JAK 2 positive and was detected at the time of my being diagnosed with myelofibrosis.

My research indicates Emodin which is an active component of traditional chinese/Japanese medicine.

Emodin comes from the Root and Rhizome of Rheum Palmatom commonly known as chinese rhubarb which is a plant, not the common variety sold in fruit shops. I believe there is several similar plants, but only what I described above works to switch off the JAK 2 gene.

I might add, that I have never used chemo or other drugs to control my myelofibrosis which is a nasty and fatal bone marrow disease. I take sodium selenenite along with high doses of pharmaceutical vitamin c and bi carb. All my tests are normal including platelets and haemoglobin.

Alternative medicine seems to be the only option as my oncologist stated that they will never find a cure, just an expensive drug to control the disease. I can be contacted for the exact amounts I take of Vit. C, selenium and bi carb.

 

Dalt

Dalt,

I am intrigued by your blog.  I am currently taking 2000mg of Hydroxyurea daily and have an appt. at the mayo clinic.

PLEASE tell me about the exact amounts of the pharmaceutical vitamin c and bi carb (what is that) and sodium selenite (selenium) you are taking and where to get?

Also, does your diet play into all of this? What does that look like on a daily basis?  Thanks.  Bev

Hi Bev,

When initially diagnosed, I took daily around 60 grams orally of pharmaceutical grade vitamin c, 5 ml of liquid sodium selenite (selenium) and 4-5 grams of pharmaceutical grade bi carb. The bi carb was to bring my body alkaline as it was very acidic. It depends where in the world you are in regards to purchase selenium.

In regards to my diet, I alway ate healthy and never smoked or drank alcohol, so this wasn't a factor. Two years on, I only take 15 - 20 grams of vitamin c daily along with 1 - 2 ml of selenium and some bi carb. I haven't seen my oncologist for over a year now as my health is fine. If you want more details, contact me direct on info (at) e-ze  (.) com (.) au .

A chap in Bulgaria recently followed my regime after consulting with his doctor. It only took 4 weeks for him to get an all clear reading which amazed his doctors. Others have take a bit of this or that, but never enough to cure a common cold let alone MF, so their results have been as expected. I might add, I am not dispensing medical advice, but will supply my research to sufferers to let them make up their mind on how to treat this insiduous disease.

Hi

I tried to email you but it bounced back.

I have had Jak2 for 2 yrs now and have had HEAPS of troubles with it.  I am on agrylin and have had times where my body rejects the tablets!  I have tried every treatment available in Australia and none have been successful or responded like the agrylin.  My specialist said that I have a good 10 years maybe.  If I'm not on agrylin my blood is that sticky that I can't feel my legs or arms and I can't walk or even see at times.  I can't stand taking tablets.  So I researched and found out about exercising.  I have trained similar to the army training 2 times a day 5 days a wk and for the first time in ages my bloods are perfect!  I am still on the tablets but that's my next step to be free from them!  I have gone from fortnightly visits and frequent hospitalisation to now every 8wks! I am keen to talk to you more about what you are doing!  Is there any other way to contact you? my email is

Message edited by CancerCompass staff. For personal protection,email address removed. Consider private reply. Please review CancerCompass Member Guidelines athttp://www.cancercompass.com/common/guidelines.html 

hi there would love to hear off you as my partner has this jak2 and doesnt really know what to expect with it and symptoms she will experience. theres no family history or genetic reason for her to have this and the doctors say she has it. but she only got bad with this after c-section with baby. something must of triggered this off somehow. my partner leanne is 27 to. please reply be interested in your experience and maybe shed some light for us on this and how to cope ect .......thanks

RE: What does it mean when you test positive for JAK 2

by health1213 on Mon Mar 25, 2013 07:49 PM

Quote | Reply

dear Dalt,

my brother has exactly same diagnosis.  I am interested to know more about Emodin.  Can you pls provide more details?  

1) how is your current health?  blood counts.  

2) where did you buy Emodin?

Can I call you or email you?

Thanks

Par

RE: What does it mean when you test positive for JAK 2

by dalt1 on Tue Mar 26, 2013 03:04 AM

Quote | Reply

Hi, I sent you a private email.

I never used Emodin, but posted the information for those who are JAK 2 positive. I am JAK negative, but what I self treated with has worked for JAK positive MF Sufferers.

My health is excellent. It is now over three years since my all clear and I have never taken any for of treatment short of vitamin C, selenium and bi carb for my MF. My blood tests are fine that I get every few months from my Doctor. I dispensed with my Oncologist 10 months after my all clear.

RE: What does it mean when you test positive for JAK 2

by SuePridgen on Fri Apr 26, 2013 01:56 PM

Quote | Reply

I have had borderline low wbc rbc hbg Lymp were high.

Bone Marrow Biopsy showed no leukemia, but low iron.

Now by regular cbc check ups show low iron, anemic, low wbc, rbc, hgb, hct, now PLT are Positive - Low 137 but detected Gene JAK2 Mutation.

Dr. recomandations wait and watch six month check up.

I have a whole in my head that won't heal the scab came off again by itself.  1 Could something like this be a symptom.

and exactly what am I or should be watching and waiting for?

I thing that was his way of not alarming me.

I just need the information so I don't wait til I get full blown sick when I can I could cut this thing off at the pass?

RE: What does it mean when you test positive for JAK 2

by sharon17 on Tue Jul 09, 2013 11:20 PM

Quote | Reply

Dalt,

I have also been diagnosed with meylofibrosis and JAK2. The Dr. tells me I need a bone marrow transplant.  I would like to try your alternative medicine.  I saw where you wrote amounts back to Bev.  However, I didn't see the emodine amount.  I am also wondering where to buy these items.  Thank you so much for your help.

Sharon

RE: What does it mean when you test positive for JAK 2

by hometypist on Wed Jul 10, 2013 06:35 AM

Quote | Reply

On Jul 09, 2013 11:20 PM sharon17 wrote:

Dalt,

I have also been diagnosed with meylofibrosis and JAK2. The Dr. tells me I need a bone marrow transplant.  I would like to try your alternative medicine.  I saw where you wrote amounts back to Bev.  However, I didn't see the emodine amount.  I am also wondering where to buy these items.  Thank you so much for your help.

Sharon

Dalt,

Your approach to cure for ET did not surprise me, your line of treatment reinforces my belief that there is a cure for ET, why the modern medicine does not want to recognise is another matter.  Also, my firm belief that one has to obstain from processed food, acidic food, etc, at least till the time our platelets are not in the normal range.  Also, I believe that most of the patients associated with ET does not want to try out alternative because of the risk involved and I can understand their predicament. 

Myself, i have been on cancercompass board since I was diagnosed with ET in 2011, you might find my messages under Essential Thrombocytosis under a differnt head and my advise to all ET fellow sufferers, linke of which is belowhttp://www.cancercompass.com/message-board/message/all, When I was diagnosed with ET, I too was on chemo for more than 1 year, at the time of diagnoses only my platelets were high but after taking the hydroxurea, my heamoglobin started going down and then doctors had to prescribe iron tablets and also when on hydroxurea other parameters were also abnromal and also body sores, feeling of unwell was always there but since more than 1 year have been under alternative treatment i.e. Ayurveda without taking the hydroxurea, though my platelets are yet to come down but it is below 1 million and static for the past 4/5 months and symptoms and bodily feel good factors are encouraging.

I agree with your research that we need go back to alkaline state which is one the foremost reason for this ET and acceleration into Mylofibrosis and also various other forms of cancers.  I think this is the only form of precaution one needs to have if one wants to have minimum incidence of cancers.  I for myself have already started on going to alkaline state of body by eating alkaline forming food but the greatest joy is getting free from all side effects associated with Hydroxurea.  On my part, though my message states various diet to be followed, I am sure that all of you will agree that first I have to be cured then only advise others, already i have a feeling that I will be getting rid of this disorder which is called ET or Essential Thromcythemia/Thrombocytosis.

I am strictly on boiled food, no oil/cheese/processed food/spice, etc.  Infact I have started to believe that it is all due to a gastrointestinal problem that I had in 1995 i.e. peptic ulcer which was just subdued(at that time I had show my peptic ulcer problem to various doctors/hospitals for more than 7 years but the symptoms used to diminish and the burning in the stomach used to resurface after some days and then I on my own decided to stop oily food/spicy food/fat/cheese from my food and then only it went away, that is what i thought but the peptic ulcer just subdued because did not cure and there was no burning sensation because i never used to take anything that used to aggrevate my stomach and this ET and even cholesterol that I had was manifestation of the unheald peptic ulcer that is my understanding.  My understand is also cemented with this belief that if we change our diet and bring back our body into alkaline state the cancers of this world have less chance of invading our body and bring forth new and unheard of disorders which was not there hundreds and hundreds of years ago.

I am JAK negative but I believe that JAK negative or JAK positive does not make much difference even with Mylofibrosis, the only difference is that those who are JAK positve and with mylofibrosis are way ahead of those who are JAK negative.

I sure would like to know what was the diet, regime you followed before you contracted this ET and were you afflicted with gastrointestinal issues however miner it may be and the diet regime you followed while taking Emodin, vitamin c, selenium, etc..

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